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Neuropathy treatments: How to avoid scams?

Posted by wideawakechas @wideawakechas, Oct 26, 2021

Has anyone heard of or tried a pill treatment called Vita Soothe Pro? Nerve Savior?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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Mentor
John, Volunteer Mentor | @johnbishop | Sep 5, 2024
In reply to @bigjohnscho "When do you think there might be a Pirenzepine product available" + (show)
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When do you think there might be a Pirenzepine product available

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Not in the near future unless you want to look into their clinical trial - https://winsantor.com/.

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heisenberg34 | @heisenberg34 | Sep 5, 2024
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
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Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

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Most of these miracle creams advertising amazing results for pain relief may offer some for folks afflicted with mild neuropathy or other types of pain, but the majority will not give much relief. Do a search from an independent company. Most of the positive reviews on the product's website are likely false ones.

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madmouse43 | @madmouse43 | Sep 8, 2024
In reply to @johnbishop "It's just my opinion after trying many of these over the years since I developed PN..." + (show)
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It's just my opinion after trying many of these over the years since I developed PN to find something to help the numbness. I don't have pain you are having and I don't blame you for being skeptical. I did a search of Connect and could find no member mention of the ReNerva. Their webpage screams run Forrest run to me - https://glossiebeauty.com/products/renerva. They don't list the ingredients, just "Made with a unique blend of powerful herbs, this cream is formulated to deliver effective results quickly."

You might have better luck finding something by searching through the list on the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/treatments/.

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I have not tried Renerva, so I have no opinion. In my experience going the route of trying to find something that worked for me, and after using 4% Lidocaine and many other topicals and electronic stimulation gadgets, I have found that there is no universal remedy, what worked for someone else did not necesarily help me and vise versa. That being said, I am now using Magnilife DB Pain Relieving Foot cream, available from Walmart and also a Nooro pad I have found to give me some relief during PN flareups in my feet.

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gregd1956 | @gregd1956 | Sep 9, 2024
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
Profile picture for bigjohnscho @bigjohnscho

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

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bobm47 | @bobm47 | Sep 12, 2024
In reply to @bigjohnscho "I am new to this forum although I have been suffering with peripheral neuropathy for 2..." + (show)
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I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I just finished chemo for lymphoma and have neuropathy in my feet and hands but alo a balance problem.
I have been taking the supplements recommended with little to no affect.
Any suggestions where to start. Has anyone tried Nerve Fresh? It claims it was tested in major colleges.?

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1 reply
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bwillob54 | @bwillob54 | Sep 12, 2024
In reply to @bobm47 "I just finished chemo for lymphoma and have neuropathy in my feet and hands but alo..." + (show)
Profile picture for bobm47 @bobm47

I just finished chemo for lymphoma and have neuropathy in my feet and hands but alo a balance problem.
I have been taking the supplements recommended with little to no affect.
Any suggestions where to start. Has anyone tried Nerve Fresh? It claims it was tested in major colleges.?

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I have all kinds of supplements and lotions. Haven’t found anything that helps. Only thing that really helps is tramadol along with Gabapentin.
I was taking hydrocodeine but I have been taking it most of my life for chronic back pain.
The pain management doctor is concentrating on my low pain. Could be causing my neuropathy.

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1 reply
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bobm47 | @bobm47 | Sep 12, 2024
In reply to @bwillob54 "I have all kinds of supplements and lotions. Haven’t found anything that helps. Only thing that..." + (show)
Profile picture for bwillob54 @bwillob54

I have all kinds of supplements and lotions. Haven’t found anything that helps. Only thing that really helps is tramadol along with Gabapentin.
I was taking hydrocodeine but I have been taking it most of my life for chronic back pain.
The pain management doctor is concentrating on my low pain. Could be causing my neuropathy.

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I don't have pain just numbness in feet, fingers, hand will cramp up and lock if straining.
Imbalance has been a problem.
Was hoping to find some answers here.

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1 reply
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bigjohnscho | @bigjohnscho | Sep 13, 2024
In reply to @bigjohnscho "Has anything you’ve tried helped." + (show)
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Has anything you’ve tried helped.

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It’s hard to tell but I think that R-ALA seemed to have some impact but unfortunately it gave me stomach upset.

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bobweller | @bobweller | Sep 13, 2024
In reply to @johnbishop "The Na-R-ALA that I take is included in the protocol of neuropathy supplements that I take..." + (show)
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The Na-R-ALA that I take is included in the protocol of neuropathy supplements that I take (4 capsules in the morning, 2 at noon, 4 in the evening). I attached a Why the Protocol PDF document with links including the research for each of the supplements and there is a link to the site where the protocol group orders the monthly supply.

I haven't taken this Immunovites brand but it's similar to what I take. It says 600 mg per serving and a serving size is 2 capsules - https://www.amazon.com/Stabilized-R-Alpha-Increased-Absorption-R-Lipoate/dp/B07DP8DHBH/

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Note, many brands of lipoic acid out there thar are good incase Amazon gets pricy.

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bobweller | @bobweller | Sep 13, 2024
In reply to @bobm47 "I don't have pain just numbness in feet, fingers, hand will cramp up and lock if..." + (show)
Profile picture for bobm47 @bobm47

I don't have pain just numbness in feet, fingers, hand will cramp up and lock if straining.
Imbalance has been a problem.
Was hoping to find some answers here.

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More related to your muscles maybe. See a Neurologist, they can determine if it's nerve or muscle issues.

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