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CA-125 through the roof - 2,847.
Gynecologic Cancers | Last Active: Sep 18 11:14am | Replies (16)Comment receiving replies
@jaynus55. I understand why the spike in your CA-125 is frightening and alarming. Frankly, I would feel the same. Anxiety causes us (me anyway) to not be able to see things objectively and so it’s difficult to put that CA-125 number in anything other than alarming. Since you are getting regular PET scans I recall that your doctors and other members in our Gynecological Cancers support group said that a PET scan is far more reliable. So, it’s good that you get these PET scans which reveal more reliable information as well as location of activity.
It sounds like your cancer care team is responsive and working with you. What do you think about getting another opinion at one of the locations suggested by @lathomasmd? Since your doctors suggested clinical trials at UVA (University of Virginia) then asking for a referral to a comprehensive cancer care center is a good idea. What do you think?
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My husband and I have discussed going to one of the comprehensive cancer care centers. My oncologist, and doc we saw at UVA all spent time at MD Anderson-Houston, so I think they already pretty much follow their protocol. We live in Virginia is why we went to UVA. We have discussed Mayo, as we have heard they are really good, and we have a friend that went there for treatment of his prostate cancer twelve years ago, and he is fine - and getting ready to turn 91 years of age! I go back in for blood work on Tuesday next week, so hopefully my white/red cells, platelets, and hemoglobin will be okay so I can get my treatment. My oncologist has been out of town this week, so I have been messaging with the nurse after getting my CA-125 result. They (PA) were recommending a blood transfusion, but I really don't want to do that. I told them I felt fine, other than the normal fatigue associated with chemo. I just stop whatever I'm doing and rest a few minutes. I think because I mentioned feeling occasional shortness of breath, I was unable to perform normal daily functions. I pretty much do what I want to do. Thoughts of a blood transfusion scares me. I'll see what my oncologist has to say when she gets back in the office next week.