1. < Neuropathy

Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

irr4et | @irr4et | Aug 25 2:08pm

I fell very hard onto my chin and beast bone two mos ago. Resulted in concussion. Ever since I have had vibrations and burning through my body plus bad burning headaches and fatiguing so easily. Even regular walking causes a flare up of these symptoms. I get very sleeping after digesting food. I already had Fibromyalgia. Does anyone know how long recovery will be?

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richardr | @richardr | Aug 25 2:20pm
In reply to @johnbishop "I did a quick search of Connect and didn't see any other members who have mentioned..." + (show)
@johnbishop

I did a quick search of Connect and didn't see any other members who have mentioned using PDE5 inhibitors for neuropathy but I did find some research on the topic. Haven't seen any clinical trials or studies though.

"Peripheral neuropathy: A report was published suggesting that daily use of PDE5 inhibitors, through improved blood flow through vasa vasorum, helped alleviate peripheral neuropathy symptoms."
-- PDE5 Inhibitors: https://www.ncbi.nlm.nih.gov/books/NBK549843/

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John, thanks for your reply and for the link. This is a 2023 article and the summation certainly indicates that this may in fact be a valid treatment possibility for PN. As I said earlier my sister-in-law is symptom free of the Raynaud's for one year after starting treatment. Let's hope Mayo Clinic will pickup on this and research this possibility. Thanks, Rick

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bigjohnscho | @bigjohnscho | Sep 5 6:08am

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

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4 replies
Mentor
John, Volunteer Mentor | @johnbishop | Sep 5 7:13am
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
@bigjohnscho

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

Jump to this post

It's just my opinion after trying many of these over the years since I developed PN to find something to help the numbness. I don't have pain you are having and I don't blame you for being skeptical. I did a search of Connect and could find no member mention of the ReNerva. Their webpage screams run Forrest run to me - https://glossiebeauty.com/products/renerva. They don't list the ingredients, just "Made with a unique blend of powerful herbs, this cream is formulated to deliver effective results quickly."

You might have better luck finding something by searching through the list on the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/treatments/.

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1 reply
bigjohnscho | @bigjohnscho | Sep 5 7:19am
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
@bigjohnscho

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

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When do you think there might be a Pirenzepine product available

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 5 7:38am
In reply to @bigjohnscho "When do you think there might be a Pirenzepine product available" + (show)
@bigjohnscho

When do you think there might be a Pirenzepine product available

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Not in the near future unless you want to look into their clinical trial - https://winsantor.com/.

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heisenberg34 | @heisenberg34 | Sep 5 8:26am
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
@bigjohnscho

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

Jump to this post

Most of these miracle creams advertising amazing results for pain relief may offer some for folks afflicted with mild neuropathy or other types of pain, but the majority will not give much relief. Do a search from an independent company. Most of the positive reviews on the product's website are likely false ones.

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madmouse43 | @madmouse43 | Sep 8 7:57am
In reply to @johnbishop "It's just my opinion after trying many of these over the years since I developed PN..." + (show)
@johnbishop

It's just my opinion after trying many of these over the years since I developed PN to find something to help the numbness. I don't have pain you are having and I don't blame you for being skeptical. I did a search of Connect and could find no member mention of the ReNerva. Their webpage screams run Forrest run to me - https://glossiebeauty.com/products/renerva. They don't list the ingredients, just "Made with a unique blend of powerful herbs, this cream is formulated to deliver effective results quickly."

You might have better luck finding something by searching through the list on the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/treatments/.

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I have not tried Renerva, so I have no opinion. In my experience going the route of trying to find something that worked for me, and after using 4% Lidocaine and many other topicals and electronic stimulation gadgets, I have found that there is no universal remedy, what worked for someone else did not necesarily help me and vise versa. That being said, I am now using Magnilife DB Pain Relieving Foot cream, available from Walmart and also a Nooro pad I have found to give me some relief during PN flareups in my feet.

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gregd1956 | @gregd1956 | Sep 9 4:36pm
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
@bigjohnscho

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

Jump to this post

YES, Oh, YES!
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bobm47 | @bobm47 | Sep 12 3:41pm

I just finished chemo for lymphoma and have neuropathy in my feet and hands but alo a balance problem.
I have been taking the supplements recommended with little to no affect.
Any suggestions where to start. Has anyone tried Nerve Fresh? It claims it was tested in major colleges.?

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