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Wildly fluctuating O2 levels

Lung Health | Last Active: 24 minutes ago | Replies (154)

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@nmac

I am currently waiting for results from a genetic mitochondrial disease that runs in my family. I was diagnosed with POTS, but after doing POTS protocol for a month they determined it's not true POTS, but POTS like symptoms. I have been fully worked up by Pulmonary and did the Pulmonary exercise test...I passed, but barely, but I passed, so they said it's not Pulmonary. With all of the different symptoms I have...they think it's mitochondrial or stemming from my nervous system not functioning properly. I still have more testing to do like a muscle biopsy if the genetic test is negative. Not giving up. (I do NOT have sleep apnea. I'm on oxygen for nocturnal hypoxemia without apnea. Hope this helps.

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Replies to "I am currently waiting for results from a genetic mitochondrial disease that runs in my family...."

Please read my previous posts. I also don’t have sleep apnea. I can’t wait for AI to read all these posts and come up with potential solutions. Although everyone is different, how can we all experience the same thing without something in common? Has everyone on this thread had the bubble test ? That showed my PFO. Local drs suggested Long Covid symptoms. I never tested positive for Covid., but apparently that doesn’t mean that I didn’t have it.