← Return to Wildly fluctuating O2 levels
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Lung Health | Last Active: Dec 3 5:39pm | Replies (126)
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Replies to "My name is Sandy. I'm currently dealing with the same issues. The Doctor issued chest xrays,..."
Thank you so much. I bet my brain is not signaling to breath sometimes!!!
I will finally follow up with a real sleep study. The O2 at night is a game changer for me!
I am currently waiting for results from a genetic mitochondrial disease that runs in my family. I was diagnosed with POTS, but after doing POTS protocol for a month they determined it's not true POTS, but POTS like symptoms. I have been fully worked up by Pulmonary and did the Pulmonary exercise test...I passed, but barely, but I passed, so they said it's not Pulmonary. With all of the different symptoms I have...they think it's mitochondrial or stemming from my nervous system not functioning properly. I still have more testing to do like a muscle biopsy if the genetic test is negative. Not giving up. (I do NOT have sleep apnea. I'm on oxygen for nocturnal hypoxemia without apnea. Hope this helps.