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Wildly fluctuating O2 levels

Lung Health | Last Active: Dec 3 5:39pm | Replies (126)

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@the1downs

My name is Sandy. I'm currently dealing with the same issues. The Doctor issued chest xrays, breathing test and sleep test. She said the sleep test, not only shows sleep ap, but also if your brain is not singling to breathe. Especially since it's happening during the day.
I found this interesting.
Hopefully I can find my way back with any updates. Thanks

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Replies to "My name is Sandy. I'm currently dealing with the same issues. The Doctor issued chest xrays,..."

I am currently waiting for results from a genetic mitochondrial disease that runs in my family. I was diagnosed with POTS, but after doing POTS protocol for a month they determined it's not true POTS, but POTS like symptoms. I have been fully worked up by Pulmonary and did the Pulmonary exercise test...I passed, but barely, but I passed, so they said it's not Pulmonary. With all of the different symptoms I have...they think it's mitochondrial or stemming from my nervous system not functioning properly. I still have more testing to do like a muscle biopsy if the genetic test is negative. Not giving up. (I do NOT have sleep apnea. I'm on oxygen for nocturnal hypoxemia without apnea. Hope this helps.

Thank you so much. I bet my brain is not signaling to breath sometimes!!!
I will finally follow up with a real sleep study. The O2 at night is a game changer for me!