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Digestive Health | Last Active: Oct 21 11:40am | Replies (567)Comment receiving replies
Replies to "Now, I'm a 33 year old female. Ever since I was 20 years old I've had..."
@samanthamorgan9491
Pittsburgh would be a great start- you have a very well known university hospital there.
Go ahead and contact them!
Let us know how it works out. We are always eager and grateful to get follow up information.
I have a lot of your symptoms, but have had no surgery. When the diarrhea got so frequently my GI did a EGD and colonoscopy. It showed ulceration throughout my esophagus and intestines. The biopsy showed I have autoimmune microscopic colitis. I just got diagnosed last week. I now am on a new journey, trying to figure out how to eat. I am on a medication to help my gut heal. I'd like to keep in touch with you to see how you do!
I am on Budesomide, just 1 capsule now. I was on 3 a day, but it gave me bad side effects. He suggested that I try a gluten free diet, with lots of well cooked, steamed, so they don't loose their nutrients. I eat mainly chicken or wild sockeye salmon. I had a piece of lean pork loin and did well with it. Mainly, my Dr said to try to eat lowfat and bland. I' m also on a temporary dose of omeprozole in the morning. I'm new at this, so I'm still trying to figure it all out.
Bless your heart!! Never give up!! You have so much to live for!! You are precious in the eyes of God and to those who love you!! Proverbs3:4 So thou find favor and good understanding in the eyes of God and man (doctors!!) Isaiah 53:5 By His stripes we are healed..1Peter2:24 By His stripes we were healed..I have issues (not as complex as yours) and have been standing in faith for about 5 years.. today I wanted to give up.. but winners never quit and quitters never win..I am praying for you!!
I feel same as you !
I’m 11 years into 6-7 chronic digestive disorders . I don’t get one day break ! It’s getting worse each year .
Now my heart ♥️ pvcs are kicking up w/ it .
I can barely eat anything, everything makes me sick or run to bathroom 🚽 like you .
I’m on my 6 th Gastro Dr.
Did many colonoscopy’s and endoscopy’s and about every other test . Even waited 8 months yo do 3 tests at Mayo Clinic Jacksonville campus in 2021.
Tried everything holistic too and diet wise . Functional medicine, you name it .
It robs you of all the joys of life .
You are so young to be going through all this too !!
Please seek out a second opinion or third . My newest Gastro is 1 by 15 min away but , she’s not much help at all .
I’m going to be doing the pill cam next . It can see more by taking 1000’s of pics . Google it. .
Ask for it .
Have you had colonoscopy yet ?
Oh Lord , this isn’t an easy journey. Keep us informed. Ok .
Have you seen your GI Dr yet? I've been thinking about you and was wondering if you found out any information, yet ?
I have not. Not until October 8th. Great....I had tonwait a month from the time of setting up my appointment til I actually got in. The hospital in my hometown is awful.
Yes she did , during the last colonoscopy in Mar , took a few biopsies. Negative.
Just put in my PCR stool sample to lab .
Also did endoscopy during colonoscopy.
Next is pill endoscopy.
I’m diagnosed with 6-7 different chronic illnesses ( gastrointestinal) . Plus chronic fatigue and PVC’s . Everyday I’m sick . I tried all different RX’s , over 20 different supplements, holistic Dr’s , elimination diets , you name it .
It’s 10 th year . Getting so much worse last 2 years. Not a day off .
Like other posts, I, too have been where you are! I had constant diarrhea every time I put something in my mouth. It got so bad that after over 2 months, I was unable to eat, then drink liquids! I was so weak that I could hardly make it to the bathroom. That's when my husband took me to the hospital. I had lost 30 pounds. I was on IV fluids for 2 days, then my GI Dr did an EGD and colonoscopy., where they found autoimmune microscopic colitis. Also my esophagus had ulcerations all the way to my stomach!I'm on Budesomide and a Rx med for diarrhea because the over the counter Imodium stopped working! I am
able to eat a healthy diet now and only have occasional loose stools. My GI said as I continue to heal, it should get better. It's been 6 weeks since my tests and I almost feel like my old self. Maybe you should get a 2nd opinion. My heart goes out to you. You don't have to suffer!!
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@samanthamorgan9491
Welcome to Mayo Connect!
I’m sorry to hear how you have suffered for so many years and with no solution in sight.
I have had different GI issues for 16 years now. There were some before, but manageable.
When local doctors couldn’t help I went to Mayo for a few years and eventually I got answers and treatment. Things are better now- not perfect.
It seems that you could benefit from a second opinion before you get worse.
Try to find a large university medical center- even Mayo if it’s possible for you.
You need fresh eyes to evaluate your current problems.
You probably get weak from loss of electrolytes with your frequent bathroom visits. Have you had some recent bloodwork to check if you have low potassium? Potassium is lost with diarrhea and will make you feel very weak.
You can not give up now, even though you want to. At a major university medical center doctors can work together to find out how to make you function better and live a more normal life.