Jan, oh my gosh, this rash sounds so painful! And your BMT doctor is sure it’s not GVHD? There’s a great informational resource for all of us with BMTs and CGVHD.
The National Bone Marrow Transplant LINK is filled with blogs, podcasts, and support for BMT survivors. Here’s one about CGVHD skin conditions:
https://www.nbmtlink.org/chronic-graft-versus-host-disease-skin-related-issues-and-solutions/
If your transplant doctor can’t help I’d suggest a dermatologist. At least to see if this is a recognizable dermatology issue.
From my experience with chemo induced neuropathy, there was no rash involved. I did some quick research online and really haven’t found neuropathy associated with a rash except for Shingles. Could it be shingles? Have you had your vaccinations yet? Are you still on Acyclovir?