Aching from the most minor of exercise

@nancy53
Hi!
What’s that other exercise saying “ no pain, no gain”lol. Not really that good for PMR, but exercise is still good for you— just whatever you can tolerate, everyone is different! I think if you have access to a pool that is the best— less resistance in water, easier to move!
Take care and good luck!

Update here! I did start at 20mg of Prednisone. My bad. Yesterday my Rheumatologist changed my diagnosis to RA. He said in the early stages of either condition, it’s difficult to diagnose. Does that sound right?

Thanks for your comments and support!

No flares, hope it stays that way.

My Rheumatologist had me taper from 10 to 7.5 a few months ago. I ended up in the emergency room with a terrible headache

I'm at 5.5mg, for the last 3 days, my only complaint is FATIGUE. I do Yoga, walk, and swim (not every day). That and a good diet keep me somewhat pain free.

It may get harder the lower I go, if so, I'll go back up a bit.

Baby steps.

Sounds like you're doing well with your tapering. I don't do as much exercise as you because of my bad back pain from my spinal fusion. Prednisone really messes with sleep and fatigue. As soon as I take it I have to fight to stay awake and then gives me insomnia at night. I seen the pain specialist tomorrow so I will see what they say. I may try to reduce to 3mgs soon. Keep up your good work, Thanks for your reply.

Diagnose last month and also not taking steroids. Working with naturopath and DO with healing modalities to reduce and clear inflammation. Just started celebrex (celecoxib) and it does provide relief. Had PT yesterday and this avid gym rat is very sore. So hard not to be able to move our bodies the ways we used to. Best wishes to you.

Glad the Celebrex is working!
Would you be willing to share what PT is doing with you...understand it's the first visit. Do they know what PMR is? I had a short stint with PT before I knew I had PMR but regardless, with my symptoms, they had me doing stuff that was crippling. I had to quit, but I still use some of their exercises.
I'm going to start my 2nd Bone Building group with my online class in a few min. Did OK after the first time back since 2017 on Monday (spoke about that in my comment).
Have you had your markers tested since working with naturopath and DO? Have they put you on supps?
Good for you for getting in there and finding a way. I have been procrastinating about taking LDN or CBD.
Hope you continue to improve.

Sorry you are hurting again.

When that happens to me, I'll go up 0.5mg for a week or so if Tylenol doesn't work. Gentle exercises help too.

The slower I go, the better I feel and I can sustain the taper.

My daughter said that there are no heroics in pain. I agree!

Feel better,

So glad you realise how important diet is. I stopped just about every flam food years ago. When I see people put fizzy drinks, alcohol, processed foods in their shopping bag a siren goes off in my brain. I also gave up dairy and meat and apart from PMR I am the healthiest I have ever been. I exercise like crazy and make sure I have plenty of protein in my diet because as we all know Pred loves messing with protein. Stay strong.

Yesterday I went to my first exercise class since being diagnosed with PMR 2 months ago. I was in a lot of pain after, so hoping since it was my first time. My Dr says exercise is good for us, since the muscles will atrophy without exercise.

I've been in PT since a failed knee replacement and then the revision for a few years now. My PT has graciously worked with what I presented so when this first kicked in end of July he just did very gently stretches. This week he incorporated a little more movement which I want and we were going slow because I had just started celebrex and didn't want to overdue. Somehow the hamstrings got overworked. On days I can I walk a little in the hood, today got on the stationary bike for about 20 min. I was very active gym rat, walking, cycling wise before all this so I know my muscles have atrophied. Little by slow. Have not redone bloodwork yet, will at some point. Naturopath has me taking 4,000 g of fish oil a day and dropping to 2,000 after 40 days for the rest of my life. He says research supports the oil in combo with heated castor packs to help break down inflammation and release it from the body. I use homeopathics (Apis and Rhus Tox have helped me), have been on an antinflamatory diet for more than 12 years. Resting so my body can heal listening to HZ frequencies has been the best medicine. I can't risk worsening my osteoporosis with prednisone and as a 3 time cancer survivor, am always looking for natural ways to help my body heal itself. I am certified in an energetic modality that is working to help my body on a quantum level. This is slow going, and still very painful parts of the days without a rhyme or reason but i have faith and am grateful I can flow with the healing. Would love to hear from others who tried or are trying to heal this crazy blood disorder without the steroids. My husband has had PMR twice and goes straight to the Prednisone so I do understand that is a good option for a lot of people. After chemo, breast imlant illness post mastectomies and IBD, I choose to be very careful of what goes in my body. I let myself get depleted this summer caring for grand toddler when preschool was closed, our daughter had a second mastectomy in Aug and my mom died. So my little body just shut down. It's part of my healing process to look at the why. Hope this helps.