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Anyone Experiencing Rhythm Issues Due to Cardiac Sarcoidosis ?
Heart Rhythm Conditions | Last Active: Sep 18, 2024 | Replies (6)Comment receiving replies
For 25 years, my Inferior Vena Cava and Superior Vena Cava have been sealed off due to cardiac sarcoidosis. My body developed an alternate arterial system which kept me alive. Only in 2024 did I develop Afib. I just had a cardiac MRI and will update you on the results on 9.13.24. Questions to be answered: Did my sarc progress causing the Afib? Is the Afib unrelated to the sarc? Which ablation or other treatment modality will my cardiologist choose to treat my Afib? Anwers on Friday, Septembe 13th. I have also enrolled in the Mayo Sarcoidosis Clinic so futher discussion on the relation of sarc and Afib is to come.
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I just had by appointment with my cardiologist. It turns out my sarc closed my heart off but did not progress from there. My cardiologist was relieved that we did not have to address cardiac sarc at this time. In fact, he wasn't even sure the sarc had anything to do with the current Afib diagnosis. He scheduled a CTA (Angiogram) and a stress test as well as an additional Echo Cardiogram for me. The advice was "Wait and see". I have to say I am amazed that, for the three months since my Afib diagnosis, I still have no idea when I am in Afib, how serious or frequent it is, or what triggers it. It seems a long time to live with something that could potentially cause a stroke with NO information on how to manage it. I am on 50mg of Metopronol and 10mg of Eliquis. I feel tired and weak most days but NO IDEA when AFIB is occurring. Any thoughts or reactions?