1. < Polymyalgia Rheumatica (PMR)

Has anyone used an anti inflammatory diet to get off prednisone ?

Posted by michwest @michwest, Aug 30 1:00am

I have had pmr for 2 plus years now and down to 2mg but each time I taper I have had more pain. My goal has been to get off prednisone by November which will be 2 years on it (I wasn’t diagnosed for 4 months). My latest CRP was higher than when I started on prednisone (it has been normal since on prednisone until now). My specialist has given me a month to try a very restricted anti inflammatory diet. No gluten, dairy, sugar, oats, nightshades or alcohol. The diet is a bit difficult but if it brings my CRP down it will be a win. I couldn’t see in the files if anyone had tried diet to actually get off prednisone instead of other drugs offered as steroid sparing. If so I would love to hear your experience. I am also on LDN and Celebrex (would like to get off Celebrex as well). Thanks

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michwest | @michwest | Sep 10 4:23am
In reply to @cgm "I am plant-based, dairy free and gluten free. It has helped and I’m finally off prednisone..." + (show)
@cgm

I am plant-based, dairy free and gluten free. It has helped and I’m finally off prednisone after 3 years. But, I’m not pain free. Greatly improved but still terribly stiff…❤️

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Hi @cgm that's good to know but must be frustrating it hasn’t completely gone into remission ? Do you take anything else to help? I’ve been on LDN as well and it definitely has helped with the pain - as well as double strength curcumin. I’m sure your on supplements to help as well. Hope the pain for you goes away soon.

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cgm | @cgm | Sep 10 6:08am
In reply to @michwest "Hi @cgm that's good to know but must be frustrating it hasn’t completely gone into remission..." + (show)
@michwest

Hi @cgm that's good to know but must be frustrating it hasn’t completely gone into remission ? Do you take anything else to help? I’ve been on LDN as well and it definitely has helped with the pain - as well as double strength curcumin. I’m sure your on supplements to help as well. Hope the pain for you goes away soon.

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@michwest I’m not taking anything for pain currently…other than an occasional Tylenol. I’ve considered LDN. I would love to hear how it works for you and any side effects. Thanks!

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michwest | @michwest | Sep 10 3:50pm
In reply to @cgm "@michwest I’m not taking anything for pain currently…other than an occasional Tylenol. I’ve considered LDN. I..." + (show)
@cgm

@michwest I’m not taking anything for pain currently…other than an occasional Tylenol. I’ve considered LDN. I would love to hear how it works for you and any side effects. Thanks!

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Hi @cgm i have been on LDN 4.5 for about 6 months now - I worked my way up each week increasing by .5. The only side effect I notice is dreaming more - nothing else. I forgot to take it the other night and I noticed about 15%-20% more pain without it so I know it’s working . I’m going to try to go up again by .5 to see if that makes any more difference but I’m very happy to be on it and see results.

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