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Waldenstroms and amyloidosis

Blood Cancers & Disorders | Last Active: Feb 25 1:55pm | Replies (68)

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@colleenyoung

Welcome to Connect Warren. So great to have someone to connect with Julie who understands what she is facing.

Julie - What other questions do you have for the doctor at the upcoming appointment?

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Replies to "Welcome to Connect Warren. So great to have someone to connect with Julie who understands what..."

know the AL amyloidosis is in his kidneys and the neuropathy but is systemic so where else is it. Been assuming he is too old for stem cell transplant (75) but know what they say about assuming. Dr will have new blood test results at next appointment which will tell if there is improvement. Still no appointment with the neurologist at Mayo. Pain in his hands is miserable and spreading up his arms and legs.

Coleen, I read a lot. I'm not a doctor. I appreciate your measured responses and high level of expertise in working with people in the throes of a difficult disease. Kudos to you.
Warren

Julie, I’m surprised there is no strong thread here about WM. The WM foundation does have lots of resources.