← Return to Waldenstroms and amyloidosis
Discussion
Blood Cancers & Disorders | Last Active: Apr 28 8:35pm | Replies (72)
Comment receiving replies
Replies to "Welcome to Connect Warren. So great to have someone to connect with Julie who understands what..."
Coleen, I read a lot. I'm not a doctor. I appreciate your measured responses and high level of expertise in working with people in the throes of a difficult disease. Kudos to you.
Warren
Julie, I’m surprised there is no strong thread here about WM. The WM foundation does have lots of resources.
know the AL amyloidosis is in his kidneys and the neuropathy but is systemic so where else is it. Been assuming he is too old for stem cell transplant (75) but know what they say about assuming. Dr will have new blood test results at next appointment which will tell if there is improvement. Still no appointment with the neurologist at Mayo. Pain in his hands is miserable and spreading up his arms and legs.