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Waldenstroms and amyloidosis

Blood Cancers & Disorders | Last Active: Apr 28 8:35pm | Replies (72)

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@colleenyoung

@azjulie How are you doing? How did chemo go for Ken? I bet it was a long day.

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Replies to "@azjulie How are you doing? How did chemo go for Ken? I bet it was a..."

He sailed through the ritoxin infusion. Been taking citoxin for 3 days with 2 more to go and so far, so good. Slept in this morning tho. They say they can't reverse the damage but hope to stop it. Still no appointment with the neurologist where we hope he can help the pain in his hands from neuropathy. Need more patience.Thanks for asking. PS: we're waiting for his hair to fall out.

Glad to hear it Julie. Neuropathy can be a challenge to manage. @johnbishop posted an interesting article about living with neuropathy here: https://connect.mayoclinic.org/discussion/any-caregivers-for-peripheral-neuropathy/ You may be interested in reading it.

My Dad had mild neuropathy due to diabetes and chemo made it worse. They lowered the dose of the drug know to cause neuropathy for his last 3 chemo rounds so that the damage would be less likely to be permanent. Is your husband's neuropathy caused by the chemo or did other causes?