Once the ANA is positive there isn't much reason to check it again, I was told. I was also told that the severity of disease or flare does not correlate with the ANA value being high or low.

@helen1000 I looked up MAC- so sorry- and wonder if that means you have some sort of immune deficiency, since you are youngish.

A rheumatologist, pulmonologist, immunologist, infectious disease doc and maybe others are probably on your plate. Ugh- sympathies!