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Hemoptysis - wonder what others do

MAC & Bronchiectasis | Last Active: Dec 7 9:47am | Replies (41)

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@karen10225

Thank you so much for your post. I find comfort in it. The only thing I can’t seem to get over is the fear no matter how many time I see the blood. Usually it’s an 1/8 of a cup and quite bright red. But you are right in that it has to be accepted because I can’t change it. Where this really controls my life is that I rarely go out and do anything. Mostly that’s because I cough up mucus a good deal of the time and of course I never know when it will be blood so I just don’t want to be in public. I am not sure what I can do about that issue.

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Replies to "Thank you so much for your post. I find comfort in it. The only thing I..."

I feel you. I too cough up mucus everyday around noon and I dare not go out during that time fearing blood would come out with mucus.

In Dr. Metersky’s webinar he did say that coughing could potentially trigger hemoptysis, and because I am very prone to it, and have had the kind of massive hemoptysis that is life threatening, I try to guard very carefully against coughing. So far, I’ve been moderately successful skirting frequent bleeding through eating a liquid, soupy diet exclusively, and drinking a lot of warm water all day long with mineral drops in it to replenish those I may lose because of the quantity of water that I drink. This keeps secretions thin enough so that I can just spit them out without force, or else they just go through my system easily. Most of all, I find that I have had to stay extremely sensitive to when secretions are building, and in that case, postpone a meal and increase the warm water intake. It works most of the time.

At first, I had to calculate my protein intake carefully so that the soup diet would nourish me appropriately, but have gotten the hang of it slowly. I hope this is helpful.