Prednisone and change in hair texture

I too have noticed a change in my hair texture since being on 5 mg of prednisone since last January . It’s now like very fine fluffy baby hair, tangles easily. Also have lost some volume. I had thick waist length hair before I got sick, and have cut it short to remedy the long stringy mess.

Wow, that is exactly what is happening to me as well, I have always had curly hair but now it is so frizzy that I wear a baseball cap every day, and it tangles like crazy. I have been on Prednisone for 13 months and it's been the last three months that my hair is just awful.

Thanks so much Nina. I hate the reality but at least good to have a cause. maybe the hair will improve if we ever get off the prednisone.

Hi @jeansg and @ninadavis, my hair was always very thick, curly and frizzy. I had PMR for a year, undiagnosed. My hair thinnned out dramatically with the PMR and GCA, no prednisone, and lost some of its frizziness.
I was off prednisone for a year and it grew back without the previous curliness, but was still wavy. I had a relapse of GCA this year, and went back on Prednisone at a high doasage. My hair is now thick and wavy, but not frizzy anymore.
I read that as we age our hair texture can change.
I find with prednisone, though, I had different side effects from the first dosing to those I've experienced with this second round.

I had really thick hair. I have lost a lot of hair and the texture has changed. It's now thin and frizzy. I just stop taking predisone but I am taking Actemra injections once a week. Has anyone had there hair go back to normal? If so how long did it take?

Hi Teri, I just turned 65 so thought age was it, but it is really awful whether or not it is age lol

Did you ever try some gel to reign in the frizz? I use it to stop my hair from getting too bushy.

Oh yes, I never not use something, going to the hairdresser at the end of the month, maybe she has a suggestion.

I think you got it right Teri. I had undiagnosed PMR for a long time too. Before diagnosis, my then PCP gave me prednisolone packs periodically for stiffness but never on a full time basis. My hair used to be so thick but no longer. I guess having had PMR and then long term prednisone made it worse. I am off the prednisone now and will see if hair thickens back up.

A good cut can really help.
They say curly hair is "forgiving" - so I get mine cut professionally once in a while and cut my own in between.