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DiscussionHemoptysis - wonder what others do
MAC & Bronchiectasis | Last Active: Dec 7 9:47am | Replies (41)Comment receiving replies
Replies to "I have hemoptysis where I cough up about an 1/8 of a cup of blood each..."
I have had numerous episodes of coughing up blood through the years. The first time was totally out of the blue and I choking and gagging on coughing up so much blood. I wouldn't be diagnosed with BE for about 7 years. It didn't happen again for a couple of years. I have since had 2 other extreme episodes and multiple minor ones. They always stop on their own and everytime it happens is frightening. I have pretty much pinpointed the causes as poor air quality or a cold. More extreme episodes air quality. I had a bronchoscopy 3 years ago and they couldn't find a cause and told me my lungs are very friable. They did find that I had MAI. I have multiple air filters in the house and recently bought one for the car. I wear an AirPro when I go outside this summer as our quality can be a problem even in the 20's.
I don't think you ever get use to it and each time is upsetting. I just started taking the NAC and now feel a little concerned from hearing that it can cause bleeding. Haven't take Ibuprofen in years for this reason.
@karen10225, I moved your recent post about hemoptysis to the previous discussion where you are connected with fellow members like @wsbme74 @gigiv @pmmar1 @reneemc @happy2023 @irenea8 @sueinmn @sisterpulse @sweethighland and more.
- Hemoptysis - wonder what others do
https://connect.mayoclinic.org/discussion/slight-hemoptysis-wonder-what-others-do/
As others have said, coughing up blood is scary. I can understand your being paralyzed by fear. I'm glad you came here to talk about it, to get tips on controlling the condition and learning that you can live well with mycobacterium simiae. The toll this is taking on your mental state might be something you wish to also talk to a counselor about. Do you have access to a social worker?