Before I had a stroke, I'd wake up feeling pretty good.
Sometimes, my mask might leak, and I'd wake up because air was blowing my eyes. Or I'd move around and the headgear might tug on my hair.
But very minor stuff.
Since the stroke, I'm just in pain all the time, awake or asleep. Joints, muscles, nerves, head, teeth, skin, you name it. It's been more than 2,000 days like that.
Does anyone have a hard time waking up when you know it's going to be an unenjoyable day? But when you have something really good happening that day you wake up easily? Is this a known psychological phenomenon, condition of sorts?
I find that planning the night before helps. Arrange for that exceptional cup of coffee you'll make. Or an outstanding breakfast. Or plan to get up and read something you've been excited about reading. Just laying in bed and answering the question "What do I need to get up for?" and already knowing the answer helps a lot.
Thank you. Does the headache often go away within minutes or an hour? When you wake up do you feel like going back to sleep within several hours, or even much sooner?
The headache is like a tight band. It does go away after a time. Sometimes it is followed by a bit of brain fog (brain works slowly).
The wanting to go back to sleep after an hour or so or feeling the need for a nap comes when I have not had enough sleep. If I have less than 7 Hours of sleep, I need a morning or afternoon nap.
My sleep seems to cycle: for awhile everything is perfect, then it drops off. I try the usual things.. change mask, position and so on. I have learned to sleep on my right side with a low pillow. I also purchased a stand similar to the ones used for IVs. I like it because it allows the hose to move as I move. So, the hose does not get stuck under my arm or yanked when I move around.
In the end, sleep is not always satisfactory. But that is so for everyone sometimes. I am older and poor sleep is a constant refrain in conversations with friends. Overall, life is much better because of my Bipap; I just try to "go with the flow" and adjust as I go along.
I hope things improve for you; getting a cpap or bipap is a big life change and takes adjustment. It can be very disheartening. But hang in there. And, don't hesitate to discuss things with your cpap provider. Mine have been really helpful, and supportive.
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Before I had a stroke, I'd wake up feeling pretty good.
Sometimes, my mask might leak, and I'd wake up because air was blowing my eyes. Or I'd move around and the headgear might tug on my hair.
But very minor stuff.
Since the stroke, I'm just in pain all the time, awake or asleep. Joints, muscles, nerves, head, teeth, skin, you name it. It's been more than 2,000 days like that.
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1 ReactionI find that planning the night before helps. Arrange for that exceptional cup of coffee you'll make. Or an outstanding breakfast. Or plan to get up and read something you've been excited about reading. Just laying in bed and answering the question "What do I need to get up for?" and already knowing the answer helps a lot.
The headache is like a tight band. It does go away after a time. Sometimes it is followed by a bit of brain fog (brain works slowly).
The wanting to go back to sleep after an hour or so or feeling the need for a nap comes when I have not had enough sleep. If I have less than 7 Hours of sleep, I need a morning or afternoon nap.
My sleep seems to cycle: for awhile everything is perfect, then it drops off. I try the usual things.. change mask, position and so on. I have learned to sleep on my right side with a low pillow. I also purchased a stand similar to the ones used for IVs. I like it because it allows the hose to move as I move. So, the hose does not get stuck under my arm or yanked when I move around.
In the end, sleep is not always satisfactory. But that is so for everyone sometimes. I am older and poor sleep is a constant refrain in conversations with friends. Overall, life is much better because of my Bipap; I just try to "go with the flow" and adjust as I go along.
I hope things improve for you; getting a cpap or bipap is a big life change and takes adjustment. It can be very disheartening. But hang in there. And, don't hesitate to discuss things with your cpap provider. Mine have been really helpful, and supportive.