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Caregivers | Last Active: 1 day ago | Replies (22)

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@IndianaScott

Hi @tavi Wishing you well on this stage of your caregiving journey. None of them are easy, but times of patient change are especially challenging for sure. My wife became very dependent on me, too. I think in certain people at certain times it is 'normal' for them to seek some level of comfort, especially during those times of change. So they look to their greatest source of that and it their primary caregiver. My wife used to get agitated when I would be out of her sight to go to the bathroom 🙂

During the nights, if it wasn't medication related, I found I had to dial back my care. I began slowly increasing the intervals between changes, etc., adding a layer of towels and pads on the bed above the sheet, etc. to 'slow down' the process in the night.

Sundowning is a very common symptom and both my wife and mother in law exhibited it. Our doctor began adjusting the times of dosages to combat that. Didn't relieve it all, but did help.

Peace and strength!

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Replies to "Hi @tavi Wishing you well on this stage of your caregiving journey. None of them are..."

Hi I’m new to this group but find so many people are walking my path of caretaking struggles right now. My husband has late stage ALS with respiratory failure and on a home NIV. What is Sundowning? I’ve not heard that term.
Janis