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Polymyalgia Rheumatica (PMR) | Last Active: Sep 19 5:47pm | Replies (38)

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@lindaadel

I was diagnosed with PMR April 2023. there is no rhyme or reason for why some people feel good some people don’t feel good everybody is so so so different even yourself you will notice how sometimes a certain dose works and then will resend it doesn’t work and then a higher dose lower dose it’s a very very confusing. if you feel the dose you’re taking is not working for you your best bet is to let your rheumatologist know. because many times the dose needs to be adjusted quite a number of times and even the medication you’re taking needs to be adjusted bottom line is PMR is no fun! I found I need a lot of patience for this PMR! I wish you the very very best!!! you definitely will feel better it’s just patience very important which I don’t have so much of!!!

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Replies to "I was diagnosed with PMR April 2023. there is no rhyme or reason for why some..."

I was diagnosed in March 2023, and was very successful with methylprednisolone. Within two days, I was able to walk without pain, but long run, the steroids damaged some tendons, caused swelling in my legs, disrupted my sleep and gave me heart palpitations! I tapered off within six months, but I was back down with terrible back problems. Im now back on prednisone, with the same side effects, but anything is better than suffering with that pain!