severe nerve pain in feet. EMG was normal. Is not neuropathy

Posted by nancyc777 @nancyc777, Sep 4 1:53pm

I have burning, tingling, electrical pain in both feet. This started in 2017, but it was mild, and was only in the evening. Then gradually, the pain started earlier in the day, and it increased in intensity. It now gets up to a “10” every day, and starts as soon as I get out of bed in the morning. The more I am on my feet, the worse the pain gets.
Arteries and veins test normal. All lab work normal. Had fusion L4/L5 d/t severe stenosis, Lumbar, with no relief of pain in feet.
Cannot tolerate anything tight on feet. Cannot go food shopping or stand long enough to cook because of pain in feet. At the end of the day, it feels like there are tight bands around my ankles. I spend most of the day icing and elevating my feet. sometimes I put feet into cold water. Been to 3 local neurologists with no help. I have tried all of the meds for nerve pain with no success. The pain eventually goes away when in bed all night. Sometimes they get red/purple but vascular doc says all the blood vessel and heart tests were normal. Don't know what to do.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@nancyc777

Thank you for caring

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@nancyc777
Does any of your medication cause side effects impacting nerves/nervous system?

I had “normal “ bloodwork at first but needed expanded iron and thyroid panels to detect iron deficiency and Hashimoto’s thyroiditis (autoantibodies).

My original recommendation stands to get the small fiber neuropathy skin punch biopsy by a neurologist. There is no cure but there are potential treatments.

Did you already go to a podiatrist for a look at your foot structure? You may benefit from orthotics/shoes for people with nerve pain. You may also want to have plantar fasciitis/tendonitis/nerve entrapment ruled out.

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@dlydailyhope

@nancyc777
Does any of your medication cause side effects impacting nerves/nervous system?

I had “normal “ bloodwork at first but needed expanded iron and thyroid panels to detect iron deficiency and Hashimoto’s thyroiditis (autoantibodies).

My original recommendation stands to get the small fiber neuropathy skin punch biopsy by a neurologist. There is no cure but there are potential treatments.

Did you already go to a podiatrist for a look at your foot structure? You may benefit from orthotics/shoes for people with nerve pain. You may also want to have plantar fasciitis/tendonitis/nerve entrapment ruled out.

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Thank you, I am going to go to the neurologist in a month or two and ask for small Fiber neuropathy test. thank you!

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I live in Florida, and was considering going to Jacksonville to the Mayo clinic there to see if they could diagnose me and help me at all. But I don’t think that they can come up with anything different than I have not already tried, or anything different that the great people on this website have suggested to me. My sister would have to take me, and we would have to get a hotel room because it is over 3 Hour drive. And I don’t know if I could tolerate being at the hospital all day, sitting, and not able to have my ice gel packs for my feet and lie down, And if they want to see me more than one day, that would be quite a hassle for my sister and me. I wonder if anyone has been there due to nerve pain in feet, and if you found that they could help you at all .

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My foot neuropathy originated after a 2019 Fusion-and-lamibectomyv

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@robrobin

My foot neuropathy originated after a 2019 Fusion-and-lamibectomyv

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Oh, how awful!

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@robrobin

My foot neuropathy originated after a 2019 Fusion-and-lamibectomyv

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@robrobin I just wanted to welcome you as a new member to Connect. Have you tried any physical therapy? All surgery creates scar tissue and it gets tight. Sometimes that tightness can cause pain. There is a special type of PT that can stretch out tight tissue and surgical scar tissue called Myofascial Release. I've done a lot of this and it has helped me a lot. Here is our discussion for more information.

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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