severe nerve pain in feet. EMG was normal. Is not neuropathy

@nancyc777
Does any of your medication cause side effects impacting nerves/nervous system?

I had “normal “ bloodwork at first but needed expanded iron and thyroid panels to detect iron deficiency and Hashimoto’s thyroiditis (autoantibodies).

My original recommendation stands to get the small fiber neuropathy skin punch biopsy by a neurologist. There is no cure but there are potential treatments.

Did you already go to a podiatrist for a look at your foot structure? You may benefit from orthotics/shoes for people with nerve pain. You may also want to have plantar fasciitis/tendonitis/nerve entrapment ruled out.

Thank you, I am going to go to the neurologist in a month or two and ask for small Fiber neuropathy test. thank you!

I live in Florida, and was considering going to Jacksonville to the Mayo clinic there to see if they could diagnose me and help me at all. But I don’t think that they can come up with anything different than I have not already tried, or anything different that the great people on this website have suggested to me. My sister would have to take me, and we would have to get a hotel room because it is over 3 Hour drive. And I don’t know if I could tolerate being at the hospital all day, sitting, and not able to have my ice gel packs for my feet and lie down, And if they want to see me more than one day, that would be quite a hassle for my sister and me. I wonder if anyone has been there due to nerve pain in feet, and if you found that they could help you at all .

My foot neuropathy originated after a 2019 Fusion-and-lamibectomyv

Oh, how awful!

@robrobin I just wanted to welcome you as a new member to Connect. Have you tried any physical therapy? All surgery creates scar tissue and it gets tight. Sometimes that tightness can cause pain. There is a special type of PT that can stretch out tight tissue and surgical scar tissue called Myofascial Release. I've done a lot of this and it has helped me a lot. Here is our discussion for more information.

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

I just found this conversation because I am looking for relief. I have exactly the same issues as nancy777.
I see the post is older but wondering if any new treatments or advice.
I plan to see a neurologist. I have seen a podiatrist and Rheumatologist. Both say I have arthritis in my big toes but the pain I have points to neuropathy. Even being under a light sheet on my bed causes painful sensations to one foot but both painful most of the time. I can't find socks that don't feel tight and restricting. My hoka sneakers and ryka shoes are the only shoes I can wear for short periods.
I am 65. I am not diabetic. I have had injuries to my toes in the past.
Thank you for any future comments.

Hello jennic1960,
Wow, we do have a lot in common, but not in a good way. I am 74. I'll try not to repeat what I have already said, but I cannot view my post as I type this.
For socks, I found some I can wear! On Amazon. "Hugh Ugoli Women's Bamboo Loose Fit Diabetic Crew Socks, Soft, Wide & Stretchy with Seamless Toe & Non-Binding Top".
These are the only socks I can wear. I did not think they would work, but they do.
I also put store brand "Bengay" on my feet. It is mostly the menthol in it that helps, at Walmart, it is "Equate Pain Relieving cream" "compare to Ultra Strength Bengay".
Tried MANY meds for the pain (originally made for seizures, or antidepressants, but used for nerve pain also), most caused severe edema, or severe brain fog. a couple of them had no side effects for me, but also did nothing for the pain.
But, I did try something that helps some...it is a muscle relaxer, "Flexoril" (cyclobenzaprine) 10 mg. A.M and P.M. The first week I took them, it made me sleepy, but I stuck with it, and the sleepiness went away after a week or so. It helps some. The doctor told me he had heard of the cyclobenzaprine helping with nerve pain.
I was tested for circulatory problems, (veins, arteries, heart), but tests came back "normal", despite my feet turning purple, blue, or burning red in the evening.
Cold helps most of all, of everything I have tried. When the pain is unbearable in the evening, I resort to cold water with a few ice cubes. I keep the container of water out on the floor because it is difficult to get cold water from the faucet. But I limit it to about 30 minutes, because I saw photos on Mayo website of people who overdid it with the ice water and suffered tissue damage. (I saw that when I searched re "erythromelalgia" at Mayo website. One neurologist suggested "erythromelalgia" to me. Perhaps it is a cousin to it, but erythromelalgia is mostly "episodes", but mine is constant, increasing as the day progresses. I spend most of the day on the couch icing and elevating. Have large gel ice packs from Walmart "Equate Reusable Hot or Cold Large Compress, 8" X 12"".
I live in Florida, so not many cold days, but I am a little better when it is cold out.
I hope this helps you.

Thank you Nancy. It was so nice of you to take the time to respond.
I am in Florida right now and live in MA. I have been taking D3 and B12 since having been told I was low on both and really did see some improvement with my feet pain but since I have been in Florida ( 3 weeks) I have had pain like I used to. Maybe it is the heat? But I don't think it has been that hot? But I do remember when this all started a few years ago it was in the summer.
I will try icing but limit the time.
When I get back to MA I am going to try to see a neuro. It makes me wonder when you said you had all the circulatory tests and they all come back normal!! That seems odd but who knows!
I have noticed since being in FLorida my rings are very tight on my fingers so something is causing swelling.
I am getting very concerned about getting enough exercise. Today I had a bad day and didn't walk very much at all.
Again thank you so very much for taking the time to answer my email.
JMC