← Return to Looking for Afib or Flutter with Autoimmune Systemic Scleroderma Help

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@patvo

Thank you so much for replying. My heart rate has never approached the 190 mark,thank goodness! But once it did rise it hasn't come down to below 120-25 range. The cardio has changed the meds a few times with no acceptable results so the ablation has been recommended as the next step. My PCP and Rheumatologist (the 2 doctors that I still have any confidence in) both agree that this is my best option now. I've found dozens of papers and studies in PubMed and credible research sites that report good results for "most patients" but, these who are usually subtracted from that group are those of us with these oddball conditions.

I think you are probably right about your spine issues contributing to other problems including the Afib. My spinal issues actually started in 2014 when I developed severe inflammation in my lumbar spine area. Totally out of the blue. Got a huge injection of steroids and others and it went away, for 4years!. In Jan 2018 I awoke one day with no feeling in my left leg and foot, right foot and right hand.No pain,no tingling etc - just total numbness. The highly recommended neuro took one look at me and concluded - female, fat and over 50 - Diabetic of course!! Of course not. Anyway he dX'd small fiber sensory neuropathy and told me to take alpha lipoic acid and order 2 Old Goats cream off the internet. Three months later I DID have a lot of pain when my third & fourth vertebra collapsed onto the fifth. So First surgery to rebuild the bottom of the spine - 24 months before I could sit in a kitchen chair long enough to eat a bowl of cereal. In 2021 developed pain in the back of my neck getting worse and, guess what?, problem in the cervical spine. Another surgery not as bad but no picnic either. So finally this last one was in Aug2023 followed by rehab and several rounds of PT and still slow recovery. Then THIS - seems like I spend my life waiting for the next shoe to drop.
I must admit that the whole "heart" problem has always been a worry, On my Dad's side ALL of my first and second degree relatives have died of heart attacks or other heart disease before they were 70 - (I'm 78) that includes my Dad and 2 half brothers as well as aunts/uncles and cousins. So probably some degree of risk there also. But, always got a clean bill from cardio.

I am sorry to hear about your daughter also having lupus. My Mom had RA and Crohn's & I truly think there are genetic links to these conditions. Thanks for the link to the afibsite. I've been reading Mayo Clinic general news for a while but never branched out to sites. Thanks!

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Replies to "Thank you so much for replying. My heart rate has never approached the 190 mark,thank goodness!..."

You have really been through it @patvo!