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Finding a specialist for Essential Thrombocythemia

Blood Cancers & Disorders | Last Active: Sep 7 1:13pm | Replies (11)
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@j123n

Yes, we can get to Boston no problem. He has been to Tufts Medicine when he had the clot in his heart but they were reluctant to offer an opinion or assistance with the foot ulcers. I kept pushing the issue because I knew the ulcers were where it all started to go downhill, but I got a weirdly political response. It was as if no one wanted to step on the toes of his current hematologist. So it makes me question how to go about getting in to see someone else (would love to get him in to Mass General hematology) without that strange push back again.

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Replies to "Yes, we can get to Boston no problem. He has been to Tufts Medicine when he..."
Lori, Volunteer Mentor | @loribmt | Sep 4 12:29pm

Don’t worry about a pushback or stepping on the toes of his current doctor. You have to be your own, in this case your husband’s, advocate for healthcare. If you’re not feeling all warm and fuzzy about his current doctor, it’s within your right to be that squeaky wheel and seek an appointment elsewhere.
Mass General would be an excellent option. Larger hospitals usually have teams that work collaboratively to provide the best care for their patients.

I found their Request an Appointment page: https://www.massgeneral.org/appointments-and-referrals#:~:text=Call%20our%20patient%20care%20team%20at%20617-726-2000%20or,care%20team%20and%20manage%20your%20appointments.%20Referring%20Providers

Having a second opinion will give you peace of mind. Will you give it a try?

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