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CLL - newly diagnosed

Blood Cancers & Disorders | Last Active: Apr 24 5:27pm | Replies (75)

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@ssid

I have been dealing with fluid in my left ear and muffled hearing since July...tried everything from nasal spray, allergy meds, 2 rounds of antibiotics/steroid pack with no relief. All though the steroids did offer some relief for about a month but my oncologist prefers me not to take oral steroids again because it messes with my wbc count. This past week I had a tube put into my ear which did releave the pressure I was feeling but my hearing is still muffled, very frustrating. I also have swollen nodes in front and behind my ear on that side. Has anyone else with CLL experienced this. The ENT mentioned the lymph tissue in the back of my nose and throat showed inflammation and a CT scan also showed some enlarged nodes in the neck area. My oncologist doesn’t seem to be concerned with the size of these nodes. I thought the ear tube would resolve this issue but it has not completely helped. I am hesitant about the tube working but I will give it some more time...

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Replies to "I have been dealing with fluid in my left ear and muffled hearing since July...tried everything..."

This sounds rather frustrating Cindy. I am tagging @vonbaron36, @gmack, @7626, @sofaramnotdead, @dougmann, and @gerryk, some of whom you have met in this discussion, that have all discussed CLL and may have experienced fluid in the ear such as yourself.

@ssid, you mentioned you had a tube put in your ear and it did help a little. Does this mean the tube is still in your ear, or was that a temporary thing? It is good your oncologist is not concerned about the nodes, but the muffled hearing must be frustrating. Is this something that they said would be temporary with tubes?