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← Return to CLL - newly diagnosed
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Hi, I was diagnosed in 2013 with CLL. I am now 57 years old and this past year my WBC has risen to 31,000 along with smudge cells and most recently a few clefted lymphocytes (which I haven't googled the meaning of as of yet bc I tend to get a bit freaked out). I will be honest this diagnosis has affected me emotionally, I watched my father battle Non Hodgkin's lymphoma for 10 years and my younger sister, who is now 15 years remission.
I am curious if anyone has made any health changes as far as their diet. I have been juicing, eating organic, no processed foods, no red meat...
I see my oncologist every two months now, no mention of treatment yet. Any words of wisdom are welcomed. Cindy
Replies to "Hi, I was diagnosed in 2013 with CLL. I am now 57 years old and this..."
Cindy
I have not changed my diet but here is some info that might offer some comfort. I am 70 and have had cll for 7 years. My white cells increased every quarterly checkup until they reached over 200 thousand. At that time my lymph nodes and spleen were swollen. I went into a clinical trial and take ibrutinib daily. No more swollen nodes and my white cell count has gone down to 12 thousand as of yesterday.This drug is now FDA approved. You may never need treatment but if you get to that point that drug worked wonders for me. Good luck to you.
gmack
Thank you for this information, I appreciate you sharing this with me.
Continued health to you,
Cindy
Hi, I was taking turmeric...maybe I should start again. Thank you
Hi,
How long have you been taking this? Just curious as to the length of time it took to lower your WBC...
over two years.
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I would ask your oncologist if it would be alright if you took curcumin or turmeric.