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Unexplained Sensations and muscle twitching

Brain & Nervous System | Last Active: Sep 21 11:01am | Replies (48)

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@kndaustin71

I am so sorry for all your symptoms with no apparent resolutions. Have you considered a physician or self referral to a larger medical facility for a thorough work-up, ie Mayo, the Research Triangle (my favorite), John Hopkins, Temple etc. These places seem to be a little more Medically intellectual and may go deeper into differential diagnoses. I find most physicians prefer straightforward issues with easy fixes and care not too much for the complex cases.

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Replies to "I am so sorry for all your symptoms with no apparent resolutions. Have you considered a..."

I contacted the Mayo. I sent a worksheet with all my symptoms and recent history to them under their suggestion. A week later, I received a cover letter style email apologizing that they didn’t have enough resource to take on my issues. Couldn’t believe it! I have since sought assistance with a local neurologist, my family doc, my cardiologist and my gastro doc. I have had many tests including an EMG for nerves and muscles, MRI of my neck, upper and lower spine, blood tests and thyroid test, and all are normal. I still have a MRI of my head and an MRA of my neck as well as a CT scan of my abdomen scheduled in the next couple days. Lastly, I do have a follow up with a neuropathy specialist at the local university hospital network. So, think I have a lot of test data but it really doesn’t explain why or how I got BFS. Some suggest it may be a reaction to a virus I had a few weeks prior to me recognizing my thumb twitch but can’t say for sure.