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Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?
Blood Cancers & Disorders | Last Active: Oct 20 2:20pm | Replies (74)Comment receiving replies
It’s reassuring for you that your numbers haven’t been changing very much since diagnosis. Many blood conditions tend to develop slowly over time so it sounds like you’re having regular blood work. That will allow your doctors to spot and follow any trends in the results.
I know, having a chronic diagnosis with a potential for changes can feel like you’re waiting for the other shoe to drop. But try to always focus forward and enjoy your life, putting the diagnosis on the back burner. If something changes, then your doctor will talk about treatment options.
How often do you have your bloodwork done?
Replies to "It’s reassuring for you that your numbers haven’t been changing very much since diagnosis. Many blood..."
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I'm still figuring out how to use these forums! My doctor has had me in wait-and-see mode since 2017, but I did have changes in 2022. I only get blood work done when I feel the need (lots of bruising); I have a standing order for it. Until this year, it was maybe every 3 or 4 months. This year, it's more often, but not by much. I keep wondering if I should get it done more often? Is enough being done? I don't know much about my mutations and don't even know what questions I should be asking. I'm a natural worrier, and now, reading how much other people know about their conditions, I feel very left in the dark.