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Thyroid and gout

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 3 3:46pm | Replies (5)

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@joannoxenham

I agree. Very little help with camzyos side effects or reporting of them. I was on camzyos for four months last year and had to stop due to debilitating headaches. After stopping, my hocm symptoms worsened to where I just had to be hospitalized for atrial fibrillation and my bnp level was over 16,000. After cardio version, heart shock, my heart stabilized but now I’m on forever blood thinner and anti arrthymic drug. They do say camzyos can cause heart failure and test for it while your on it, but what about when you stop. Is there any testing or follow up of people after they stop taking it?

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Replies to "I agree. Very little help with camzyos side effects or reporting of them. I was on..."

Great, we are all talking. I wish you well and hope that people can respond to your question. We all need honest support. And the more people that respond and give their info. Will be helpful to the people that are going through it. The more information maybe can slow down the seriousness of side effects, knowing ahead of time. Also when going off of drug . We all want to feel better. A not worry about complications, which sometimes cannot be avoided.