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Idiopathic Subglottal Stenosis

Ear, Nose & Throat (ENT) | Last Active: Oct 17, 2023 | Replies (28)

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@hopeful33250

Hello @brookssh and @deborahe My left vocal cord is completely paralyzed. I also had a very raspy voice and I would tire easily when I talked. I found myself talking less and less as the situation went on. I consulted doctors and they said that my option for relief was to have an implant put in the paralyzed cord. I went to Cleveland Clinic and had that procedure done and it helped immensely. Now the two vocal cords close better and I have less difficulty with swallowing, choking and talking. It was a good decision for me. Has anyone ever suggested surgery such as this for your situation? Teresa

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Replies to "Hello @brookssh and @deborahe My left vocal cord is completely paralyzed. I also had a very..."

<br><br><br><br><br><br><br><br>So wonderful to hear from you, thanks for getting in touch.  No one has mentioned this to me, but I have a very similar situation to you.  My left vocal cord does not always work, and certainly not properly, so I too have a very<br> raspy voice and I do get very tired talking.  I have gotten collagen injected and it also helped immensely, but only for about six months.<br><br><br>I have thought about contacting a doctor at Cleveland.  Could you relay who did your surgery and anyone else you consulted there?<br><br><br>I also have a subglottic stenosis so I get balloon dilations and CO2 laser on scar tissue to keep my trachea open for clear breathing.<br><br><br>Best wishes to you and thanks for your help.  Susan<br><br><br><br><br>Sent from Windows Mail<br><br><br><br><br>

Hi @brookssh, Your situation sounds a bit different from mine in that I do not have the subglottic stenosis. That sounds difficult with the balloon dilations, etc. The doctor I saw at Cleveland Clinic is Dr. Paul Bryson. Here is the website with his info: http://my.clevelandclinic.org/staff/14474-paul-c-bryson. Cleveland Clinic was a 3 1/2 hour drive from home, but I felt it worth the drive. Best wishes to you. Keep in touch with Mayo Connect, we would like to know how you are doing. Teresa