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Thyroid Issues and POTS

Heart Rhythm Conditions | Last Active: Sep 8 7:48am | Replies (18)

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@aball789

Unfortunately, I am the one descendant that inherited a hereditary trifecta! I am diagnosed with PoTS, thyroidism, and Graves disease. I experienced symptoms of PoTs during my teenage years, but once I entered my 20's hyperthyroidism crept in. I did my best to ignore these symptoms because I was influenced to suppress nothing physical and psychological feelings. Plus I started to lose A LOT of weight in my early 20's, so I ignored yet another blatant symptom for the sake of vanity. Everything changed in my mind 20's when I miraculously conceived despite being told it was not probable! However, my pregnancy was high risk and delivery extremely traumatic. Ultimately my pregnancy triggered all symptoms to surface, worsen, and put Graves disease on the table. The past 5 years have been all trial and error as I try to find the best ways to manage these 3. Eventually I did have ablative radiation for the thyroid. Radiation is rough and has caused other issues with the areas surrounding the thyroid, and still trying to find the correct hormone meds as I am going between hypo and hyper thyroidism. I have found a few medications that help manage some of my symptoms, but have more trial&error ahead as we will continue to experiment until my primary care and I find the absolute best combinations to manage symptoms, provide comfort, and a better quality of life.

I share all of this to say you are not alone. Yes, it's hard to find what works for you and you have to keep advocating for yourself. I hope you have or can find a provider that is welcoming and willing to do what it takes to help you.

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Replies to "Unfortunately, I am the one descendant that inherited a hereditary trifecta! I am diagnosed with PoTS,..."

It is amazing what we can live with and keep chugging along. I support your continuing efforts on your behalf ... they sound like wise choices. I have sometimes found the Mayo Clinic a good source of up-to-date info and trials. I encourage you to keep on keeping on, as we said in the 60's. That's pretty much what life wants us to do, if not demands! My challenge these days is to remember that the little walks I should be taking are now undeniably important ... and probably the only thing keeping me from a wheelchair! Luckily there's some lovely weather happening here in New York, which encourages me. People sometimes talk about bravery ... I don't feel brave ... but I suppose you could refer to courage about that "chugging along" thing! Anyway, best to you!