Hi @brookssh, welcome to Connect! I'm glad you asked about this because it is a rare condition that should be discussed. Here is some information I was able to find, which includes additional resources and a section on investigational therapies: http://rarediseases.org/rare-diseases/idiopathic-subglottic-stenosis/

I'm also tagging @hopeful33250, who's a mentor here on Connect who may be able to help as well. Have you asked your physician if they know of any research being done on this?