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Non Hodgkin's Lymphoma- Watch & Wait Approach

Blood Cancers & Disorders | Last Active: Oct 7 11:27am | Replies (234)

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@quimbie

When finally diagnosed with Follicular Lymphoma from a small lump on my throat it was wait and see. Had scans regularly. The doctor said it is a slow-growing tumor in my chest we will watch it. I had bone marrow test done and it was ok. This was in 2005. I had to wait for 6 years before I needed chemo. That is a long wait with Dr. visits and the worry and concern. I had chemo for over 2 years and finished last chemo at end of 2011. I see the Dr. 2 X a year for exam and had cat scan every year until this year the Dr. said my scans are not showing anything that needs to be addressed but they continue the blood work every 6 months. You have to stay positive and take care of yourself with rest and good food and family and do not dwell on what could be just concentrate on positive outcome. Sorry you have to face this. I can understand. I had both of my knees replaced this year and doing just fine. I will be 81 in couple of weeks and doing ok. Take each day as it comes with prayer and positive thoughts.

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Replies to "When finally diagnosed with Follicular Lymphoma from a small lump on my throat it was wait..."

@quimbie Thank you so much for your reply. It is so helpful hearing of other’s experiences. When you say you had chemo for over 2 years, do you mean you were treated a number of times? I am so glad for you that you have had been in remission for a number of good years!! My biggest fear (when I allow myself to think about it) is that it may transform into LBCL while I am in the “Watch & Wait”. By the time it shows with symptoms or bloodwork changes it will have already transformed, which is more serious and a much harsher treatment needed. I’m doing my best to rest in peace with it and learn to live with it…. Most of the time I do very well in not letting it consume me. Thanks again.