@www3 first, my apologies for taking too long to respond to your question. As many of us have experienced, we all stood in very long lines, waiting to see different specialists in our own home area. One of those specialists was able to connect me with Mayo Rochester after being rejected by Mayo, Jacksonville and Vanderbilt. Before going to Mayo was lucky enough to find a couple of medical professionals that had an idea about how to help me and those ideas involved acupuncture multiple supplements and cranial sacral treatments. These were all aimed at affecting the autonomic nervous system and calming it down. I had a tilt table test near home that showed some level of autonomic dysfunction, which is a clue in LC because LC affects the nervous system. I had so many different tests done at Mayo Rochester that included blood tests, a second tilt table test multiple interviews by doctors and other medical professionals and the only thing noteworthy was that the second tilt table test showed that my autonomic nervous system was back to normal the medical professionals there said that was a sign that my body was healing. What seemed like hundreds of different blood tests showed everything normal. Mayo was looking for markers that they were aware of that pointed to LC. My primary symptoms were exercise intolerance, brain fog, and post exertion malaise. The most noticeable symptom that I experienced soon after my first booster was a feeling of swaying, not so bad that I felt like I was going to trip and fall. In fact, I’ve never tripped and fallen, but just a rocking swing sensation.

More specifically to your question, mayo, set me up with months of virtual coaching with nurses and exercise people. I also took a course of Cymbalta and Naltrexone which have been shown to be helpful for LC sufferers. Through the home virtual coaching phase, I had access to medical professionals at Mayo Rochester to ask any questions that I had. To make the story short today I feel better, I would say I know how to manage the symptoms that still remain, and with time my symptoms seem to diminish. Now it’s been nearly 3 years since my first and last Moderna booster so we will see how things go from here. I will say that my body has deconditioned which I don’t like at all and I’m fighting like hell to get back in better shape. In order to keep symptoms at bay Mayo coaches, moderation of physical exertion, which has limited my exercise sessions to basically 15 minutes of cardio and resistance exercise three days a week where I used to do 60 minutes six days out of seven.