Somebody tell me why CKD stage 3a or 3b is no big deal.
The knee-jerk prescription of every healthcare provider I see is for me to "take some Ibuprofen" even though I've been doing that consistently since 1990.
Then, surprise, I get told to not take any NSAIDs at all by my PCP. I look up his reasons, and it tells me I have stage 3b chronic kidney disease. To the best of my knowledge, the stage after 3b is stage 4, and that appears to be a big deal as far as the subject of kidney disease goes.
Not according to the Nephrologist I asked to see. She thinks it's all no big deal. She thinks I need to stop having trouble forgiving 30 years of PCP's knee-jerk just telling me to take Tylenol and/or Ibuprofen for what I now know is a whole raft of things wrong with my C and L spine, and "move forward" in my life. "Move forward into what?" Was my reply. She never answered that one. She even reminded me I am 70 years old, and just how long do I plan to live from now on? I told her I have religious issues with options such as donor kidney's and blood transfusions. It's like that wasn't a real problem that I need to consider among my options for this future I am supposed to just forgive past healthcare providers who knew my kidney's were gonna get shot, but hey, it avoids me taking opioids.
I'm seriously wondering if I've got a bad kidney specialist or what? Your thoughts on this situation would be most appreciated? Thank you.
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In my experience a dietician is better at helping with diet concerns, as related to specific health problems. Physicians typically barely take a course in nutrition, during their training.
Also, every medication, prescription or non prescription. Effects something, sometimes many things. We have to assume they will affect the organs they warn about, rather than that they won’t. This is coming from someone with a history of chronic pain, from degenerative disease, many allergies to pain killers (prescription & non), & stage IV, metastatic cancer. I am no stranger to pain, & medication. Caution; Tylenol is hard on your liver.
I went into acute liver failure from Tylenol. No alcohol, no history of fatty liver, or any liver problems. It’s not just the combination.
Sorry but you seem to have misunderstood. My doctor said not to take Tylenol etc because of both the liver & kidneys. He indicated I was probably eating too many (refined?) carbs. I do not take any type of drug prescribed or otc for my arthritis pain. The fatty liver is not serious and in fact at my last checkup ( once a year) the enzyme (?) levels were good. I don’t drink alcohol except maybe 4 oz of wine at holidays so my doctor was not concerned about alcohol consumption. I have used cbc with thc ( bought online from a reputable company) and it helped with the pain, but it took 2-3 months daily before I got results. Too expensive for me now.
Mine was at 40 gfr, I started drinking water 18 oz five or six times a day, my gfr now is 70 to 80. I am 70 years old BTW
Do you have a cut off time for drinking all that water, so that it doesn't keep up all night?
Thank you for clarifying that. I did misunderstand it.
I did try CBD products, my daughter is in her 20's and she knows those her own age who use it for arthritis too. So, living in Seattle, it was easy to try out. I can't tolerate THC though, at all. The CBD didn't help me, at all. It wasn't bad, it just didn't affect anything on me. I honestly can't even imagine not doing anything about the pains at all. I made such a stink when the doctor punctured my lumbar while putting in epidural steroids. He did order an MRI though that finally tells us what there is that needs treating and it's a bunch of stuff. I've got a referral now processing to Neurosurgery. We'll see what they can come up with.
It's very helpful. I just saw the nephrologist, first time, last week. She gave me "kidney.org" too, on my exit summary papers, on leaving, but told me nothing about what or where I'd find anything lifestyle useful. I guess they say it so many times, they forget it's all new to us, when we begin. I appreciate it. Thank you.
@mrainne I saw that you didn't know you had a kidney infection, which is concerning if it is symptomless. What symptoms led you to call an ambulance?
It's not a kidney infection that I had, or have. It's chronic kidney disease now. Meaning my kidneys are having trouble keeping up with the job of filtering that they're still supposed to do for me.
Oh, I think maybe you are replying to someone else's post, and I got it, instead. I haven't had to call an ambulance at all for years, and not at all for my kidneys.