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Interstitial pulmonary fibrosis
Lung Health | Last Active: Sep 2, 2024 | Replies (58)Comment receiving replies
I checked with my pharmacy too and Olev retail was like $14,000 for one month. Esbriet has a generic and was "only" a couple of hundred dollars a month. I understood that out of pocket expenses were capped at $8000/year for all drugs and the Medicare tool says everything would be at no cost after one spends that amount. Glad it will be simpler AND CHEAPER next year. I have multiple lung issues so I saw a second pulmonologist to consider if one of the two antifibrotic drugs would be more indicated for me.
Replies to "I checked with my pharmacy too and Olev retail was like $14,000 for one month. Esbriet..."
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@vic83,
I am so sorry that you are working on several lung issues…one is seriously enough…
Please call Medicare and talk to them-they are really nice and helpful.
When “we” were diagnosed late 2022, all I did was research and take notes and stress. My husband was just in denial and refusal. The money was a huge part.
Convincing him that “we” were worth it was tough.
Medicare held my hand numerous times. I kept calling because I couldn’t believe that 2024 was “only” going to be the $3300 or so, and nothing else after, during this year. Any other meds were all covered because he had met his max for the year. No one ever mentioned $8000…? However, we did spend over $8000 last year for Ofev overall for the year.
Ofev is a specialty pharmacy medication-I think there are 8 pharmacies in the country that provide it. (If I remember right) They ship in an ice pack. And will overnight if you are running low. You are lucky to have a pharmacist that will talk to you about it!
Please touch base with any questions; and let me know how your Medicare chat goes-like I said, I called numerous times to make sure they were all on the same page. Wish you well with your new treatment plan 🙏