← Return to Hypothyroidism and potential hyperparathyroidism with nodules found

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@shelleyw

sps196, would you please explain more about the Afirma kit.
I have hypothyroidism(probably genetic from my mom but I have been treated for it only off and on. Hyperparathyroidism-screwy and erratic with slightly elevated calcium. I have not taken a calcium supplement for 40 years, last child born then. I eat very little dairy, no reason. If you are knowledgeable about HPTH, I would love to ask you about it. My relationship with PTH started 17 yrs ago, after 4 years of megadoses vit D, it finally led to late life diagnosis, age 49, of celiac disease, which severely damaged villi that won't recover even on GF diet. I got diagnosed as secondary HPTH due to malabsorption, celiac, issues. Now, depending on which of 5 different dr.s I consulted with, I have Tertiary HPTH with slightly elevated calcium, Sestimibi scan showed no tumor, but I may have hyperplasia in PTH that can't is overworked and stuck in the open position and continues to think I need more calcium. 3 drs say definitely have surgery on PTH glands, 2 say definitely not, wait and see. I am so confused, I have done lots of research, but now I'm too exhausted to do anything. Any help would be greatly appreciated. Thanx ShelleyW

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Replies to "sps196, would you please explain more about the Afirma kit. I have hypothyroidism(probably genetic from my..."

You may find it helpful to look at the information available at the Tampa parathyroid hospital website. One thing I learned from them is that a normal calcium for anyone over 50 is less than 10. Anything higher can cause symptoms and will cause damage to many organs over time. If you need surgery they operate on more parathyroids than most places in the world. Take a look and answer the questionnaire on their site, it may be helpful to you