← Return to Interstitial pulmonary fibrosis

Discussion

Interstitial pulmonary fibrosis

Lung Health | Last Active: Sep 2 9:03am | Replies (58)

Comment receiving replies
@ch47

My husband started taking Ofev beginning of 2023, and we had to pay $3300 +/- first month. As the retail price of Ofev is around $14,000 per month, we were well past the donut hole in the first month. During 2023 we paid almost $700 per month for the rest of the year. 5% of the total monthly cost of the drug.
In January 2024, we paid the $3300 again once, and then nothing for the rest of this year.
As I now understand, it will be $2000 in January 2025. Then nothing for the rest of the year.
Maybe because the actual cost of the med is so much, it put him past donut hole first month. ???
I think we have some great docs…was his GP who caught it early. Our pulmonologist is also well versed in IPF, and set us up with several people to go over the different meds, with her recommendation for Ofev. She has followed us ( my husband) constantly at first with blood tests, checkups and consultations. Now we are at 3-6 months, depending. He does not appear to have progressed 🙏 and was caught early. All of his doctors a pleased.
He is also not using any oxygen and is walking 1-2 miles a day, cooler weather x2, and playing golf 3-4 times a week. He is 77, and I’ve tried to keep us healthy…
He does take a nap after golf but has been like that forever.

To healthsnobw3, if you would prefer Ofev, check with your insurance company for next year, also call Medicare, number on your statement, and talk to them-so helpful for making decisions on cost.
Are you doing oxygen?
Happy weekend to all…love this site and all of you for support…

Jump to this post


Replies to "My husband started taking Ofev beginning of 2023, and we had to pay $3300 +/- first..."

I checked with my pharmacy too and Olev retail was like $14,000 for one month. Esbriet has a generic and was "only" a couple of hundred dollars a month. I understood that out of pocket expenses were capped at $8000/year for all drugs and the Medicare tool says everything would be at no cost after one spends that amount. Glad it will be simpler AND CHEAPER next year. I have multiple lung issues so I saw a second pulmonologist to consider if one of the two antifibrotic drugs would be more indicated for me.