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Anyone taking long-term low-grade antibiotics for recurrent UTIs?

Posted by minischnauzer @minischnauzer, Dec 13, 2022

Has anyone been taking a low grade antibiotics for 9 months for recurring UTI’s and developed joint and muscle problems while taking them? I’ve been developing some real issues with leg muscles, back and joints, so much so it’s becoming painful to walk. Any feedback would be appreciated as my next step is to call the doctor and I want to make sure I’m correct about the antibiotic effects. Thanks

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minischnauzer | @minischnauzer | Jul 18, 2024

I have recurrent UTI, and this particular time my urologist has me on augmentin for 1 week and nitrofurantoi-n 50mg for 3 months daily. I once saw a comment here that said never to use this antibiotic for long term. Has anyone ever used this and if so were you ok any horrible long term side effects?

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minischnauzer | @minischnauzer | Aug 25, 2024

I have really suffered with joint and muscle pain especially in the legs while taking antibiotic for 3 months. I stopped taking it and now I’m a chronic case again…very frustrating.

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bobinnevada | @bobinnevada | Aug 26, 2024
In reply to @minischnauzer "I have really suffered with joint and muscle pain especially in the legs while taking antibiotic..." + (show)
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I have really suffered with joint and muscle pain especially in the legs while taking antibiotic for 3 months. I stopped taking it and now I’m a chronic case again…very frustrating.

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I had 3 UTI's in a year when first got my transplant, first 2 were treated in hospital then 13 days of intravenous antibiotics and last with 3 months of Cipro. Never had any muscle or joint issues tho.
Ask your PCP or nephrologist if it may be another med you're taking
Sorry to be not much help

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minischnauzer | @minischnauzer | Sep 1, 2024
In reply to @fotula "Has anyone been advised to use Hiprex or methenamine mandelate after the course of antibiotics clears..." + (show)
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Has anyone been advised to use Hiprex or methenamine mandelate after the course of antibiotics clears the UTI? Both of these medications are anti-infectives - not antibiotics. They cause no antibiotic resistance and don't upset the gut biome. As far as using the estrogen cream goes, it does work. It changes the vaginal PH back to normal which helps protect against UTI's.

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I was given the methenamine to be taken with vitamin c, but it was too harsh on my stomach. Did you have to take vitamin c with it? I think this is the last resort for me since I’ve been on antibiotics forever for recurring UTIs.

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recoverymom | @recoverymom | Jun 3 11:50pm
In reply to @mom2204 "Try cranberry juice capsules. One daily. It works well for some. There is also a formula..." + (show)
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Try cranberry juice capsules. One daily. It works well for some. There is also a formula with a dextrose molecule. Again one daily. It is well worth the trial. The rational for using it is to prevent E. coli from invading bladder wall.
A sensitivity report on your urine culture may show the bacteria are resistant to Keflex. Daily macrobid , from my experience resulted in a interesting overgrowth of bacteria that are often cultured out of Foley catheter bags, NO THANK YOU. The cranberry capsules have been remarkably beneficial and may work for others.

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Please advise on what brand of cranberry capsules you are using. I would like to try this for my recurrent UTI's .

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randymor | @randymor | Jun 4 8:54am
In reply to @recoverymom "Please advise on what brand of cranberry capsules you are using. I would like to try..." + (show)
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Please advise on what brand of cranberry capsules you are using. I would like to try this for my recurrent UTI's .

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@randyor
I would like to know al also

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Marilyn McFarland | @1942marilyne | Jun 4 7:58pm
In reply to @recoverymom "Please advise on what brand of cranberry capsules you are using. I would like to try..." + (show)
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Please advise on what brand of cranberry capsules you are using. I would like to try this for my recurrent UTI's .

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Nature made. Twice a day. Forever

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recoverymom | @recoverymom | Jun 4 11:07pm
In reply to @1942marilyne "Nature made. Twice a day. Forever" + (show)
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Nature made. Twice a day. Forever

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Thanks so much! I am at my wits end from these and will try this approach.

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