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Tacrolimus blood levels: Do yours vary?

Transplants | Last Active: Sep 2 7:36am | Replies (39)

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@ajdo129

Hi @gerryp
By any chance have you taken any new medication since July that might interact with the tacrolimus?
I am assuming you are adhering also to the dietary rules of foods and spices to avoid.
It sounds like you are staying well in touch with your transplant team as you are all are dealing with the unsettling blood results.
I hope your levels are soon stable. Barbara aka ajdo129

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Replies to "Hi @gerryp By any chance have you taken any new medication since July that might interact..."

Hi Barbara. Thanks for your thoughts. No, I have not started any new medications or taken any new supplements that might have interacted with the tacrolimus. In terms of diet - I do think the sour stomach might be more attributable to some of my summer vacation food choices, but I’ve dialed that back, and still notice the sour stomach - even after I eat simple meals. And, yes, I’m pretty diligent about staying in touch with my Mayo JAX transplant team. They have been terrific. I was just hoping that at some point I could get down to blood labs every 3 months - but that seems less likely to happen given what’s been going on. To further complicate it, CVS just refilled my tacrolimus prescription, and the drug manufacturer has changed. I will probably start taking those pills in the next couple of weeks. Last time that happened, it wreaked havoc on my tac blood levels.
Hope you are doing well.