I am a 75; year old woman diagnosed with orthostatic tremor.

How does the term Orthostatic fit into the symptoms? What are the other symptoms? What treatments have you tried so far?

I don't understand the "Orthostatic" either. At 75 you truly do not want to experience any more falls....the next could be a hip! Might consider using a walker. My first thoughts..... ENT for any inner ear issues, and neurology workup.

There are no treatments for orthostatic tremor. There is one drug which I do not wish to take. All I need to do is always walk mindfully and take do not lift only one leg up at a time. I just wondered if anyone else has it. The doctors around here have never heard of it!

I am 78 and was diagnosed with orthostatic tremor 8 years ago by a Movement Disorder Neurologist. It is a rare neurological disorder ( in 8 years I have never met anyone else with OT!), characterized by high frequency tremors in the legs. Standing in one spot is so difficult and feels like I will lose my balance. Walking is better, although that has become more difficult over the years. Many doctors have never heard of it, and I had to "educate" my primary MD, my headache specialist, and my endocrinologist about OT after I was diagnosed. A good source of information is http://www.orthostatictremor.org. It is truly a difficult disorder to live with and misunderstood by many. I tried meds for 3 years, but they did not help and had too many side effects.

Thanks for your reply. I so understand about drs. knowing nothing about this. I think because it happens to older women! I going to be advising my first three doctors as to what this is so the next time a woman needs help, they’ll know where to start.

I don’t feel I’m getting any worse, but I guess I’ll know it when that happens. Good luck to you and keep walking!

I guess I don't fit the normal profile, I'm a 77 year old male living in Florida and I've had OT for about 22 years. As you are aware it is a very difficult condition to diagnose and difficult, at best to treat. I have been dealing with this a long time and it is a progressive. I had never heard of it until I was diagnosed and it's difficult to accept when you have been in close to perfect health your entire life. As far as I'm aware there is no treatment that really works and I have tried about everything. It's even difficult to walk now and all I can suggest is try to keep a positive attitude. If you would like to discuss this more feel free to reach out and we can e-mail or phone

I just wrote you a long reply, and then lost it ! But all I really said was keep on keeping on, as all of us with this tremor must do, pay attention always when you are moving. I used a cane for awhile but I really didn’t need it, so stopped.
My neurologist told me it would Not get worse 🤔. I’m hoping she’s right. Good luck to you, and all who have this condition.

I so understand everything you have stated. As long as I am very mindful of each step I take, I’m okay, haven’t fallen lately.

I also have what is supposedly unrelated vibrations in my core only when I am lying down. Either before I fall asleep or when I wake up. Once I’m up, they go away. No pain, just inside vibes.

Hello 7881188,

I'm a retired (high school teacher) 70 year old woman with a clean diet who exercises 5-6 times weekly. I read articles and studies and listen to webinars about all kinds of tremors because my own tremors freak me out. Mine are a symptom of Parkinson's Disease for which I was diagnosed 6 months ago.
This may be a no-brainer but I recommend you go to YouTube and type in Osteopathic Tremor as the subject you want to explore. THERE'S A LOT!!!

I began copying titles and websites from YT for the MAYO CLINIC audience, but grew tired, so I'm simply telling you or anyone interested about this fantastic resource. I've learned a lot of valuable info about PD that my doctor, neurologists and Movement Disorder Specialist never mentioned to me (probably because they didn't know, due to being overwhelmed themselves seeing, diagnosing and treating patients with standard protocol). My own research and conferring with friends, family, (I'm fortunate to personally know specialists in the field), and doctors have provided me with an expansive understanding about PD's complexity. I'm now near to deciding on undergoing a treatment that's not mainstream.

Coping with symptoms and deciphering at times conflicting information about diseases, disorders, and syndromes can be exhausting and discouraging, but we must advocate for ourselves! There is much to be hopeful about!

I wish you all the best!

lagioconda

I just got back from Mayo where I was diagnosed with autonomic neuropathy and orthostatic hypotension - which I’ve been dealing with for years. I’m tired all the time. Can sleep for too many hours. Also dealing with anxiety