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Interstitial pulmonary fibrosis
Lung Health | Last Active: Sep 2 9:03am | Replies (58)Comment receiving replies
Thank you so much for sharing these ideas…last year was really tough and we had to pay the whole amount for first month (put us past the donut hole) and then almost $700 a month for the rest of the year. Like you, I checked every financial aid place, but we were over the limit. It really put a hole in our pocket, but worth it.
This year we just (just???) had to pay to get past the donut hole, what is that, like $3300? no charge for the rest of the year. He takes Ofev and seems to be doing well.
Next year, I believe it is $2000 first month and then nothing for the remainder of the year.
🙏
I hope that you are doing well on your medication and that you continue to do well!
Please share if you have anything else …
Replies to "Thank you so much for sharing these ideas…last year was really tough and we had to..."
Thank you for this: We're at about the same place with Esbriet; tomorrow, we're going to call the pulmonologist to see if CellCept (along with E.) would help—it costs next to nothing, and we're curious about using both. We started with Ofev but got bounced off their support program because our income was too high—that's why we moved to Esbriet (by "we" I mean my spouse). So if, in fact, that first $2K cost gets us to the place where we're good for the rest of the year, we're going to ask about going back to Ofev. Right now, our insurance supplement to Medicare is charging $1450 for the first month of Esbriet. Are you at the oxygen concentrator place, yet?
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Yes, next year this is an important change to Medicare and the max out of pocket cost for Part D drugs will be $2000. This year it was $8000. So that is really good news for people who need expensive Tier 5 drugs!
I almost got put on this anti-fibrotic, but I did Consult with Specialist who said my pulmonary fibrosis was stable for the moment and didn't see the risk benefit of the drug and instead put me on oxygen for exertion and night sleep. Medicare covers the O2 also.