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DiscussionAnyone been diagnosed with CDA type 2 anemia or know someone who is?
Blood Cancers & Disorders | Last Active: Sep 1 7:53pm | Replies (14)Comment receiving replies
Replies to "Absolutely, I am happy to share my experience. I have not had a single transplant since..."
It is very encouraging to hear Abigail that you have not needed transfusion for 10 years. My brother has iron overload as well and just started medication for it, let's see if it helps. He is older and is also diabetic in addition to liver issue like yours, that's why we are apprehensive since splenectomy is a major surgery. However, frequent blood transfusion is also extremely hard, so we were thinking even if splenectomy reduces the need for the transfusion, it might be worth it. We will consult the doctors and see what they advise. I had also heard of clinical trials for drugs like Sotatercept and lupatercept - did you come across any information related to it?
Thanks