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Interstitial pulmonary fibrosis

Lung Health | Last Active: Sep 2 9:03am | Replies (58)

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@healthsnobw3

Consider Esbriet or its generic form; Genentech has a program that might help you afford the medication—we're working through that, as well. If you have Part D health insurance, you might be able to get as far as the doughnut hole and then move from there . . . We earn too much for complete compensation, but not enough to afford it, so we're looking at all kinds of options. See if there is a research institution that might be able to help. We are close to two teaching hospitals and have benefited tremendously. You can always get a second opinion from another pulmonologist practice, too, and see what whoever has to say. Don't leave this up to the "normal" pulmonology group who might not have connections with those research institutions.

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Replies to "Consider Esbriet or its generic form; Genentech has a program that might help you afford the..."

Thank you so much for sharing these ideas…last year was really tough and we had to pay the whole amount for first month (put us past the donut hole) and then almost $700 a month for the rest of the year. Like you, I checked every financial aid place, but we were over the limit. It really put a hole in our pocket, but worth it.
This year we just (just???) had to pay to get past the donut hole, what is that, like $3300? no charge for the rest of the year. He takes Ofev and seems to be doing well.
Next year, I believe it is $2000 first month and then nothing for the remainder of the year.
🙏
I hope that you are doing well on your medication and that you continue to do well!
Please share if you have anything else …