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@mjha

Hi Abigail,

Thank you so much for sharing your experience. I am amazed and happy that you have fought so bravely, and you are doing well. Hope your brother is doing well too. I would love to talk to you if possible. One specific question I have is - did your need for transfusion decrease or go away completely after the spleen was removed?
My brother was diagnosed with CDA type 2 anemia few months ago, he is requiring transfusion every 2 to 3 weeks since last December. We are evaluating splenectomy option and could use any and all information related to the condition and splenectomy.

Thank you Abigail, I look forward to hearing from you.

Madhuri

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Replies to "Hi Abigail, Thank you so much for sharing your experience. I am amazed and happy that..."

Absolutely, I am happy to share my experience. I have not had a single transplant since my splenectomy/ cholecystectomy nearly 10 years ago. My doctors wanted to remove my spleen from a very young age but my Mom wanted the decision to be mine so we waited until I was old enough to grasp what that meant. It also wasn’t causing too many issues other than occasional discomfort. I also wasn’t allowed to play any sports or participate in any activities that could lead to me being hit in the stomach as it could rupture my spleen and with the size that it was it would have caused catastrophic internal bleeding. It just so happened that right when I was old enough to make the decision myself I began having more pain and other issues so we went ahead and removed it.
Also, I wanted to add that while I was having transfusions my liver was taking on the extra iron which was causing damage, which could have affected my heart as well. They placed me on a medication to help prevent that and I had a severe allergic reaction to it, my body was covered in rashes for several months if not years.