Indeterminate MRI Findings - Terrified.

Posted by markoohay @markoohay, Aug 29 3:14pm

I had one of those full body scans done at Prenovo. It recommended a follow up MRI of the abdomen because it saw a cyst on my pancreas. I had no symptoms other than some heartburn and elevated pancreatic enzymes back in July, which came back down (assumption was GERD); but I went ahead and had the follow up MRI last week and it found an "indeterminant nodular prominence at the pancreatic head which may be developmental variant vs post inflammatory change or developing lesion". I was able to get a GI to schedule an endoscopic ultrasound next week, but I'm all over the place emotionally. I still have no symptoms, other than what feels like muscle pain near my belly button (and I also have a small hernia there). And of course, because of all the anxiety, my stomach is upset (wasn't upset prior to the findings).

Anyway, I'm literally beside myself. I'm terrified and stumbled across this sight so I thought I'd participate. I'm terrified the EU will bring bad news (even though there is every possibility its something else). Just having a hard time not focusing on the worst.

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

The fact that it was found this early is HUGE!!!! And it could just be just a cyst. I know exactly how you feel......hang in there!!

REPLY

Agreed, if it is something, it's all about finding it early and dealing with it fast. Early detection is the key. Best of luck!

REPLY

Agree with all! Early detection is the key. If it is something, that is not benign, you have many options for treatment and can take comfort that there are many living with this as a chronic disease. If it is benign, breathe a sign of relief and demand surveillance scans e dry 6 months or even 3 months if your family has a history of GI cancers!

REPLY

Definitely a good thing they found it early! Stay strong, it is hopefully just a benign cyst.

REPLY

I had a cyst on my pancreas found early with a Scan and I was so lucky!!
Waiting is never easy but hang in there!

REPLY
@gamaryanne

Agree with all! Early detection is the key. If it is something, that is not benign, you have many options for treatment and can take comfort that there are many living with this as a chronic disease. If it is benign, breathe a sign of relief and demand surveillance scans e dry 6 months or even 3 months if your family has a history of GI cancers!

Jump to this post

Thanks. No family history of any serious GI issues other than GERD. Having blood tests today. I’m hopeful but obviously very concerned. Thanks for the comment.

REPLY
@weezi

I had a cyst on my pancreas found early with a Scan and I was so lucky!!
Waiting is never easy but hang in there!

Jump to this post

Thanks!

REPLY

I would hold back on panicking at this point though fully appreciate that is easier said than done. I don't believe GERD in itself causes elevations in lipase/amylase but it can be a risk factor for pancreatitis which would cause blood abnormalities. It's possible you could have low level pancreatitis without all the dramatic symptoms that acute pancreatitis would cause. Sometimes it's an autoimmune condition. Pancreatitis can also produce pseudo cysts. Given you've had past elevations it's possible what they are seeing is an inflammatory process as mentioned. In the last decades, imaging has become much more accessible to people and more and more of these incidental cysts are being found. It is rare that they will change into something with worrisome features. Monitoring these cysts is one of the only tools that doctors have to try and catch lesions before they develop into pancan, despite the low incidence of that happening. You can learn more by searching incidental pancreatic cysts and if familiar with medical terminology follow your keywords with google scholar. I've had several EUS and outside of missing my morning coffee, they were pretty much a breeze. I'll cross my fingers you'll get a positive (relatively) report.

REPLY
@sb4ca

I would hold back on panicking at this point though fully appreciate that is easier said than done. I don't believe GERD in itself causes elevations in lipase/amylase but it can be a risk factor for pancreatitis which would cause blood abnormalities. It's possible you could have low level pancreatitis without all the dramatic symptoms that acute pancreatitis would cause. Sometimes it's an autoimmune condition. Pancreatitis can also produce pseudo cysts. Given you've had past elevations it's possible what they are seeing is an inflammatory process as mentioned. In the last decades, imaging has become much more accessible to people and more and more of these incidental cysts are being found. It is rare that they will change into something with worrisome features. Monitoring these cysts is one of the only tools that doctors have to try and catch lesions before they develop into pancan, despite the low incidence of that happening. You can learn more by searching incidental pancreatic cysts and if familiar with medical terminology follow your keywords with google scholar. I've had several EUS and outside of missing my morning coffee, they were pretty much a breeze. I'll cross my fingers you'll get a positive (relatively) report.

Jump to this post

Thanks! And I’m doing my best not to panic, but as I’m sure you understand - I lose the panic fight every so often.

REPLY

A few things, get a CA19-9 blood test if you haven't already, it is the marker for pancreatic cancer although it may be elevated for other reasons. Second thing, if it is cancer - don't panic but act speedily to get treatment. After diagnosis, speed to treatment in a hospital that specializes is key especially if you need Whipple procedure. Third thing is take everything on the Internet with two heaping spoonfuls of salt. All the survival statistics are OLD and terrifying - when I was diagnosed last December (it was found by accident, like you) everything I read said I had 3 months to a year to live. I had modified Whipple (left my stomach intact) on February 9th, just finished my 11th of 12 rounds of Folfirinox, no signs of recurrence or metastases. Life is good, so hang in there!

REPLY
Please sign in or register to post a reply.