If you think that the doctor isn't giving you the best care, look for a second opinion. I am not sure if my doctor that I was going to prior to getting the referral was the best for me. I might have been better going to transplant team sooner. My doctor was talking about possibly needing a transplant, having me go for some tests and then waiting until those tests were considered old and I almost had to start all over again. If a doctor doesn't want you to have a second opinion then run. A doctor should want the best for your health and not be so arrogant that they think they know more than anyone else, but research the doctors that you go to.