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@ktgirl

I haven't had any testing done so far. I don't think my doctor felt I was ready to look into a transplant yet. I really don't know what to think about my doctor sometimes.

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Replies to "I haven't had any testing done so far. I don't think my doctor felt I was..."

Bless your heart, you must get confused. Perhaps it’s because they are confused. Is your doctor a Pulmonologist? If not you might want to ask your doctors office for a referral to one.
Just a thought.

If you think that the doctor isn't giving you the best care, look for a second opinion. I am not sure if my doctor that I was going to prior to getting the referral was the best for me. I might have been better going to transplant team sooner. My doctor was talking about possibly needing a transplant, having me go for some tests and then waiting until those tests were considered old and I almost had to start all over again. If a doctor doesn't want you to have a second opinion then run. A doctor should want the best for your health and not be so arrogant that they think they know more than anyone else, but research the doctors that you go to.