← Return to Long haul Covid tremors and muscle spasms

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@sevencasey

Hi there, any results from the 2nd opinion? No answers from my neurologist as well, but I've had the muscle spasms (fasciculations) for almost 2 years now. Also terrified of ALS.

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Replies to "Hi there, any results from the 2nd opinion? No answers from my neurologist as well, but..."

I've had the fasciculations for almost 4 years now. The neurologist I went to ruled out ALS, she said a known trigger for benign fasciculations syndrome is a preceding viral infection, in my case Covid. My fasciculations got worse after each Moderna vaccine, I had two of them.
She also said the fasciculations might go away on their own, or they might not. Since I've had them for almost 4 years now and no other signs of ALS, I'm pretty confident she is correct about it not being ALS. Hope that might help give you some peace of mind in your case as well. 🙂

Hi!

I have a had a few things going on, muscle twitching being one of them (for complete story see previous post). I went down the ALS hole for a while but am now out. I have a friend with ALS and what I have going on is not (even close) to the same. He has gone from active athlete to wheelchair in 6 months. What seems to be working for me: Push through the discomfort / weakness / twitching and eat healthy and exercise. In my case this seems to be helping, albeit it is a grind.