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@chickytina

I also had a double lung transplant, but on May 4-5 (it was overnight), 2022 at Mount Sinai. I was bed ridden for a couple of months and not able to walk more than 10 steps without my oxygen going down to the 30s while on constant oxygen at a level 5. Then I couldn't get my oxygen to go above 80 after lying down for over an hour. Then I was in the hospital on oxygen at level 30 and I was able sit up at 100% oxygen. Luckily I was only in the hospital for 1 week when they found a pair of lungs for me. Now I am able to walk miles and don't need oxygen. I am also able to dance cumbia for hours. Going from a life of bare existence to thriving, I would definitely do it all again. Although the meds that you have to take for the rest of your life do affect other things. For example, I had border line issues with my thyroid before, now I have to take meds. I would suggest that you go through all of the testing and see. There is a lot of testing that you need to do before you can get listed. Even if you are really bad you need to have the tests to make sure that you are a viable candidate.

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Replies to "I also had a double lung transplant, but on May 4-5 (it was overnight), 2022 at..."

Wow. That's quite a story. I know I've connected with you before and am glad you wrote back again. It is good to have someone to communicate with that knows what you're going through. Take care and thanks again for responding. It's so good to hear positive feedback. 🙏🏼❤️