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I would like to hear from anyone who has had a lung transplant

Transplants | Last Active: Sep 15 8:10am | Replies (41)
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@helenrivera

It is worth it. Let the transplant doctor's tell you otherwise. My Pulmonologist & Infectious Disease Doctors at Kaiser both told me at different times I was not a canidate. I finally insisted on a referral to see the specialist and here I am breathing on my own. Never give up🙏

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Replies to "It is worth it. Let the transplant doctor's tell you otherwise. My Pulmonologist & Infectious Disease..."
ktgirl | @ktgirl | Aug 28 10:38am

So do you have any autoimmune diseases that affect your lungs? I just spent 10 days in the hospital with pneumonia and they drained 2+ quarts of fluid from my right lung. I've been home for a month now and still can't walk more than 3 minutes without sitting down and catching my breath. I'm 66 years old and I've been dealing with RA for 30 years now. I've had 3 joint replacements and should have an elbow replacement but don't want to risk an infection. So many issues to consider. So glad it's going well for you. I've been on oxygen 24/7 for about 3 months which isn't that long compared to some people. It must feel wonderful not dragging air hoses along with you. 😊
I keep praying that God will give me the strength to accept all of this. He has gotten me this far and know He won't abandon me!🙏🏼🙏🏼🙏🏼

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